Conducting Rural Health Research, Needs Assessment, and Program Evaluation – Resources
Selected recent or important resources focusing on Conducting Rural Health Research, Needs Assessment, and Program Evaluation.
Codesigning a Community-Based Participatory Research Project to Assess Tribal Perspectives on Privacy and Health Data Sharing: A Report from the Strong Heart Study
Presents findings from a workshop on health data privacy and sharing preferences with 14 tribal leaders whose communities are involved in the Strong Hearts Study. Discusses protocol for consulting tribal communities prior to engaging in biomedical research, issues of data safety, and respecting the distinct preferences of communities.
Author(s): Cynthia Triplett, Burgundy J. Fletcher, Riley I Taitingfong, et al.
Citation: Journal of the American Medical Informatics Association, 29(6), 1120-1127
Date: 03/2022
Type: Document
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Presents findings from a workshop on health data privacy and sharing preferences with 14 tribal leaders whose communities are involved in the Strong Hearts Study. Discusses protocol for consulting tribal communities prior to engaging in biomedical research, issues of data safety, and respecting the distinct preferences of communities.
Author(s): Cynthia Triplett, Burgundy J. Fletcher, Riley I Taitingfong, et al.
Citation: Journal of the American Medical Informatics Association, 29(6), 1120-1127
Date: 03/2022
Type: Document
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Engaging Communities Through Issues Forums: A How-To Guide for Onsite and Online Community Engagement
Offers guidance on community forums as a technical education tool, including information on planning and hosting a forum, strategies for engaging communities, and resources to support committees and stakeholders. Features examples from forums on farm vitality, farmer mental health, and family health. Requires email registration to view the guide as a flipbook, with a PDF download option at the bottom of the screen.
Author(s): Maria Pippidis, Bonnie Braun, Jessie Ketterman, Shoshanah Inwood, Nicole Wright
Date: 03/2022
Type: Document
Sponsoring organization: Cooperative Extension Service
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Offers guidance on community forums as a technical education tool, including information on planning and hosting a forum, strategies for engaging communities, and resources to support committees and stakeholders. Features examples from forums on farm vitality, farmer mental health, and family health. Requires email registration to view the guide as a flipbook, with a PDF download option at the bottom of the screen.
Author(s): Maria Pippidis, Bonnie Braun, Jessie Ketterman, Shoshanah Inwood, Nicole Wright
Date: 03/2022
Type: Document
Sponsoring organization: Cooperative Extension Service
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Population Denominator Data Sources and Data for Use with HCUP Databases (Updated with 2021 Population Data)
Identifies sources of population data that can be used with Healthcare Cost and Utilization Project (HCUP) databases to calculate rates of hospital care events per population. Includes rural-urban population data sources. Appendix A, Tables A.6 and A.7 provide U.S. population figures from 2000 through 2021 for a 4-category urban-rural definition and a 6-category urban-rural definition.
Date: 2022
Type: Document
Sponsoring organization: Agency for Healthcare Research and Quality
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Identifies sources of population data that can be used with Healthcare Cost and Utilization Project (HCUP) databases to calculate rates of hospital care events per population. Includes rural-urban population data sources. Appendix A, Tables A.6 and A.7 provide U.S. population figures from 2000 through 2021 for a 4-category urban-rural definition and a 6-category urban-rural definition.
Date: 2022
Type: Document
Sponsoring organization: Agency for Healthcare Research and Quality
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Accelerating the Use of Findings from Patient-Centered Outcomes Research in Clinical Practice to Improve Health and Health Care
Offers an overview of presentations and discussion from a workshop series on patient-centered outcomes research. Topics include research methods and implementation, collaboration to support health equity, research sustainability, disseminating findings, and informing evidence-based policy making.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Offers an overview of presentations and discussion from a workshop series on patient-centered outcomes research. Topics include research methods and implementation, collaboration to support health equity, research sustainability, disseminating findings, and informing evidence-based policy making.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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A Cross-Sectional Survey of Potential Factors, Motivations, and Barriers Influencing Research Participation and Retention Among People Who Use Drugs in the Rural USA
Study examining research participation and retention among rural people who use drugs (PWUD) based on surveys of 255 research cohort members from Oregon, Kentucky, and Ohio. Examines participant demographics, drug use history, factors influencing research participation, and barriers and motivators related to research retention.
Author(s): Angela T. Hetrick, April M. Young, Miriam R. Elman, et al.
Citation: Trials, 22, 948
Date: 12/2021
Type: Document
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Study examining research participation and retention among rural people who use drugs (PWUD) based on surveys of 255 research cohort members from Oregon, Kentucky, and Ohio. Examines participant demographics, drug use history, factors influencing research participation, and barriers and motivators related to research retention.
Author(s): Angela T. Hetrick, April M. Young, Miriam R. Elman, et al.
Citation: Trials, 22, 948
Date: 12/2021
Type: Document
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Defining "Rural" for the Study on Human Services Programs in Rural Contexts
Report describing the impacts of rural definitions on research design and methods for a study of human services delivery in rural areas. Addresses U.S. Department of Agriculture Rural-Urban Continuum Codes, rural regions, and the limitations of certain definitions.
Author(s): Dallas Elgin, James Murdoch, Corianne Payton Scally, Heather Hahn
Date: 11/2021
Type: Document
Sponsoring organizations: 2M Research, Administration for Children and Families, U.S. Department of Health and Human Services, Urban Institute
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Report describing the impacts of rural definitions on research design and methods for a study of human services delivery in rural areas. Addresses U.S. Department of Agriculture Rural-Urban Continuum Codes, rural regions, and the limitations of certain definitions.
Author(s): Dallas Elgin, James Murdoch, Corianne Payton Scally, Heather Hahn
Date: 11/2021
Type: Document
Sponsoring organizations: 2M Research, Administration for Children and Families, U.S. Department of Health and Human Services, Urban Institute
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At the Heart of Community-Engaged Research in Halifax County, N.C.
Describes a research project through North Carolina Central University (NCCU) that examines health disparities in rural Halifax County, NC and that places emphasis on building trust between researchers and the community. Discusses community-engaged research methodologies and the process of training researchers to conduct such research.
Date: 11/2021
Type: Document
Sponsoring organization: National Institute on Minority Health and Health Disparities
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Describes a research project through North Carolina Central University (NCCU) that examines health disparities in rural Halifax County, NC and that places emphasis on building trust between researchers and the community. Discusses community-engaged research methodologies and the process of training researchers to conduct such research.
Date: 11/2021
Type: Document
Sponsoring organization: National Institute on Minority Health and Health Disparities
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Human Services Programs in Rural Contexts: Mixed Methods Analysis, Integration, and Triangulation Plan
Analysis plan outlining the research design and methodology of a study of human services delivery in rural areas funded by the U.S. Department of Health and Human Services' Office of Planning, Research, and Evaluation (OPRE) in the Administration for Children and Families (ACF) in collaboration with the Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau (MCHB). Covers stakeholder engagement, research questions and qualitative data collection, data analysis, and integration of findings.
Author(s): Dallas J. Elgin, Kelly McAleer, James Murdoch, et al.
Date: 09/2021
Type: Document
Sponsoring organizations: 2M Research, Administration for Children and Families, U.S. Department of Health and Human Services, Urban Institute
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Analysis plan outlining the research design and methodology of a study of human services delivery in rural areas funded by the U.S. Department of Health and Human Services' Office of Planning, Research, and Evaluation (OPRE) in the Administration for Children and Families (ACF) in collaboration with the Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau (MCHB). Covers stakeholder engagement, research questions and qualitative data collection, data analysis, and integration of findings.
Author(s): Dallas J. Elgin, Kelly McAleer, James Murdoch, et al.
Date: 09/2021
Type: Document
Sponsoring organizations: 2M Research, Administration for Children and Families, U.S. Department of Health and Human Services, Urban Institute
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Development of a Culturally Anchored Qualitative Approach to Conduct and Analyze Focus Group Narratives Collected in Diné (Navajo) Communities to Understand the Impacts of the Gold King Mine Spill of 2015
Presents an overview of a focus group study of the impacts of the Gold King Mine Spill of 2015 on communities in the Navajo Nation in partnership with community members. Discusses the process of developing the partnership between university, tribal college, and Navajo Nation representatives, developing the focus group methodology, and conducting the focus groups, highlighting the cultural practices and leadership of the Navajo Nation.
Author(s): Nicolette I. Teufel-Shone, Carmenlita Chief, Jennifer R. Richards, et al.
Citation: International Journal of Environmental Research and Public Health, 18(17), 9402
Date: 09/2021
Type: Document
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Presents an overview of a focus group study of the impacts of the Gold King Mine Spill of 2015 on communities in the Navajo Nation in partnership with community members. Discusses the process of developing the partnership between university, tribal college, and Navajo Nation representatives, developing the focus group methodology, and conducting the focus groups, highlighting the cultural practices and leadership of the Navajo Nation.
Author(s): Nicolette I. Teufel-Shone, Carmenlita Chief, Jennifer R. Richards, et al.
Citation: International Journal of Environmental Research and Public Health, 18(17), 9402
Date: 09/2021
Type: Document
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Inequities in the Geographic Accessibility of COVID-19 Biomedical Therapeutic Trials in the United States
Research report examining geographic proximity to COVID-19 biomedical therapeutic trial sites, breaking down U.S. clinical trial data by rural/urban location, age, and race/ethnicity. Charts depict drive times to trial sites for each demographic group, comparing rural and urban populations.
Author(s): Rohan Khazanchi, Samuel D. Powers, Elizabeth T. Rogawski McQuade, Kathleen A. McManus
Citation: Journal of General Internal Medicine
Date: 09/2021
Type: Document
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Research report examining geographic proximity to COVID-19 biomedical therapeutic trial sites, breaking down U.S. clinical trial data by rural/urban location, age, and race/ethnicity. Charts depict drive times to trial sites for each demographic group, comparing rural and urban populations.
Author(s): Rohan Khazanchi, Samuel D. Powers, Elizabeth T. Rogawski McQuade, Kathleen A. McManus
Citation: Journal of General Internal Medicine
Date: 09/2021
Type: Document
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Additional resources are available related to this guide. See the full list of resources by topic for:
- Evaluation methods and resources
- Needs assessment methods and resources
- Research methods and resources
Last Updated: 6/27/2024