Codesigning a Community-Based Participatory Research Project to Assess Tribal Perspectives on Privacy and Health Data Sharing: A Report from the Strong Heart Study

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Presents findings from a workshop on health data privacy and sharing preferences with 14 tribal leaders whose communities are involved in the Strong Hearts Study. Discusses protocol for consulting tribal communities prior to engaging in biomedical research, issues of data safety, and respecting the distinct preferences of communities.

Cynthia Triplett, Burgundy J. Fletcher, Riley I Taitingfong, et al.

Journal of the American Medical Informatics Association, 29(6), 1120-1127

03/2022

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American Indian or Alaska Native · Culture and cultural competency · Research methods and resources