Conducting Rural Health Research, Needs Assessments, and Program Evaluations – Resources

CARE Data Principles, Indigenous Data, Data Related to Indigenous Peoples and Interest
Offers principles for ethical use of Indigenous data with focus on collective benefit, authority to control, responsibility, and ethics (CARE). Discusses implementation of CARE principles, language, and resources for learning more.
Author(s): Sarah Barsness, Jewel Cummins, Maria Victoria Fernandez, et al
Date: 05/2023
Sponsoring organization: Data Curation Network
view details

Navigating the Ethical and Methodological Dimensions of a Farm Safety Photovoice Project
Discusses the ethical considerations of the photovoice method of participatory research with a close look at vulnerable populations, privacy considerations, power dynamics in research, and agriculture-specific concerns. Describes an agricultural health and safety photovoice project and how researchers handled these ethical concerns as the project unfolded.
Author(s): Florence A. Becot, Shoshanah M. Inwood, Elizabeth A. Buchanan
Citation: Journal of Bioethical Inquiry, 20, 249-263
Date: 05/2023
view details

Considerations for a National Drinking Water Quality Compliance Assessment
Outlines what an assessment of compliance related to safe drinking water in the United States would look like in 4 phases: quality compliance definition and identification, spatial location considerations, compliance solutions and their costs, and solution funding and gaps. Includes considerations for tribal and rural areas.
Author(s): Gregory Pierce, Laura Landes, Grace Harrison, Lena Schlichting, Lauren Dunlap
Date: 04/2023
Sponsoring organizations: Rural Community Assistance Partnership, UCLA Luskin Center for Innovation
view details

Assessing the Accuracy of California County Level COVID-19 Hospitalization Forecasts to Inform Public Policy Decision Making
Evaluates model performance and accuracy regarding the forecasting of infectious diseases by retroactively examining COVID-19 forecasting in California counties. Utilizes archived forecasts from the California Department of Public Health's California COVID Assessment Tool to analyze the accuracy of forecasts referenced with actual COVID-19 hospitalization. Discusses issues related to model accuracy, such as local transmission trends, variant prevalence, and county population size, and how accurate forecasting is important for public health planning and policy.
Author(s): Lauren A. White, Ryan McCorvie, David Crow, Seema Jain, Tomás M. León
Citation: BMC Public Health 23, 782
Date: 04/2023
view details

Why the Federal Government Needs to Change How It Collects Data on Native Americans
Describes how the federal government collects data on race and ethnicity and resulting inaccuracies that impact data on American Indian and Alaska Native people. Identifies a number of issues related to race and ethnicity data, including how information on multiracial individuals is looked at and potential changes to how Hispanic identity will be considered. Discusses policy and research implications and offers recommendations for data collection.
Author(s): Robert Maxim, Gabriel R. Sanchez, Kimberly R. Huyser
Date: 03/2023
Sponsoring organization: Brookings Institution
view details

Building Rural Primary Care Research by Connecting Rural Programs
Provides an overview of a program meant to connect rural medical education programs with a community of practice that conducts successful research and engages in scholarly activity. Discusses the impact of the Scholarly Intensive for Rural Programs event that took place in January 2022 that offered support for professional development, academic communities, and scholarship in rural health professions education programs.
Author(s): David F. Schmitz, Sharon Casapulla, Davis G. Patterson, Randall Longenecker
Citation: The Annals of Family Medicine February, 21(Suppl 2), S82-S83
Date: 02/2023
view details

Improving the Representativeness of the Tribal Behavioral Risk Factor Surveillance System Through Data Integration
Examines the effectiveness of utilizing data integration methods to improve representation of American Indian/Alaska Native (AI/AN) populations in the Tribal Behavioral Risk Factor Surveillance System (TBRFSS). Provides comparisons of data before and after selected data integration methods and discusses the usefulness of calibration and sequential mass imputation as methods to improve representation.
Author(s): Sixia Chen, Janis Campbell, Erin Spain, Alexandra Woodruff, Cuyler Snider
Citation: BMC Public Health, 23, 273
Date: 02/2023
view details

Assessing the Use of Constructs from the Consolidated Framework for Implementation Research in U.S. Rural Cancer Screening Promotion Programs: A Systematic Search and Scoping Review
Reports on a literature review examining the Consolidated Framework for Implementation Research (CFIR) domains and constructs in rural cancer screening promotion programs. Explains the 5 CFIR domains of intervention, inner setting, outer setting, individuals, and process that influence the success of implementing interventions. Discusses 15 studies that examine how CFIR is used and reflects on how cancer screening promotion programs can be improved in rural areas.
Author(s): Jennifer L. Moss, Kelsey C. Stoltzfus, Madyson L. Popalis, William A. Calo, Jennifer L. Kraschnewski
Citation: BMC Health Services Research, 23, 48
Date: 01/2023
view details

Access to Jobs, Economic Opportunities, and Education in Rural Areas
Provides an overview of the challenges experienced in rural communities such as connectivity issues; access to goods, social services, and healthcare; and a lack of educational and economic opportunities. Includes implementation strategies for rural communities to evaluate, plan for, and improve accessibility, along with related case studies.
Additional links: Read Online
Date: 2023
Sponsoring organizations: National Academies of Sciences, Engineering, and Medicine, Transportation Research Board
view details

Cancer Clinical Trials: Federal Actions and Selected Non-Federal Practices to Facilitate Diversity of Patients
Examines actions taken by federal agencies to increase diverse population enrollment in cancer clinical trials as well as practices by non-federal cancer centers to facilitate diverse enrollment. Discusses strategies such as collaboration, reducing barriers, data standardization, training, utilization of community ambassadors, and more. Focuses on inclusion of underrepresented groups such as racial/ethnic minorities, young adults, older adults, those with low incomes, women, American Indian and Alaska Native (AI/AN) persons, and people living in rural communities.
Additional links: Full Report
Date: 12/2022
Sponsoring organization: Government Accountability Office
view details