Rural Health
Resources by Topic: Research methods and resources
Reimagining Rural: Shifting Paradigms About Health and Well-Being in the Rural United States
Discusses ways to address health disparities in rural areas with a focus on shifting away from the deficit narrative of rural places. Explores definitions of rural, the diversity and intersectionality of rural citizens, and how to conduct participatory community research to promote partnerships and health equity in rural communities.
Author(s): R.A. Afifi, E.A. Parker, G. Dino, D.M. Hall, B. Ulin
Citation: Annual Review of Public Health, 43, 135-154
Date: 04/2022
Type: Document
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Discusses ways to address health disparities in rural areas with a focus on shifting away from the deficit narrative of rural places. Explores definitions of rural, the diversity and intersectionality of rural citizens, and how to conduct participatory community research to promote partnerships and health equity in rural communities.
Author(s): R.A. Afifi, E.A. Parker, G. Dino, D.M. Hall, B. Ulin
Citation: Annual Review of Public Health, 43, 135-154
Date: 04/2022
Type: Document
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Perspectives of Region XI Head Start Federal, Research, and Program Partners in Carrying out a National Study of American Indian and Alaska Native Head Start Children, Families, and Programs
Explores the relationship between research and federal stakeholders and Region XI Head Start, which is the region managed by federally recognized American Indian and Alaska Native (AI/AN) tribes. Discusses the process of including AI/AN representation in Head Start data and the origin of the AIAN Head Start Family and Child Experiences Survey (AIAN FACES). Includes reflection on the need for culturally appropriate research practices and data collection in AI/AN populations.
Author(s): Michelle Sarche, Lizabeth M. Malone, Laura Hoard, et al.
Citation: American Journal of Community Psychology, 69(1-2), 239-253
Date: 03/2022
Type: Document
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Explores the relationship between research and federal stakeholders and Region XI Head Start, which is the region managed by federally recognized American Indian and Alaska Native (AI/AN) tribes. Discusses the process of including AI/AN representation in Head Start data and the origin of the AIAN Head Start Family and Child Experiences Survey (AIAN FACES). Includes reflection on the need for culturally appropriate research practices and data collection in AI/AN populations.
Author(s): Michelle Sarche, Lizabeth M. Malone, Laura Hoard, et al.
Citation: American Journal of Community Psychology, 69(1-2), 239-253
Date: 03/2022
Type: Document
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Codesigning a Community-Based Participatory Research Project to Assess Tribal Perspectives on Privacy and Health Data Sharing: A Report from the Strong Heart Study
Presents findings from a workshop on health data privacy and sharing preferences with 14 tribal leaders whose communities are involved in the Strong Hearts Study. Discusses protocol for consulting tribal communities prior to engaging in biomedical research, issues of data safety, and respecting the distinct preferences of communities.
Author(s): Cynthia Triplett, Burgundy J. Fletcher, Riley I Taitingfong, et al.
Citation: Journal of the American Medical Informatics Association, 29(6), 1120-1127
Date: 03/2022
Type: Document
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Presents findings from a workshop on health data privacy and sharing preferences with 14 tribal leaders whose communities are involved in the Strong Hearts Study. Discusses protocol for consulting tribal communities prior to engaging in biomedical research, issues of data safety, and respecting the distinct preferences of communities.
Author(s): Cynthia Triplett, Burgundy J. Fletcher, Riley I Taitingfong, et al.
Citation: Journal of the American Medical Informatics Association, 29(6), 1120-1127
Date: 03/2022
Type: Document
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Strengthening Excellence in Research through Veteran Engagement (SERVE) Toolkit 2.0
Presents a toolkit to provide guidance for researchers looking to engage veterans in their research. Highlights successful practices and guidance for the implementation and evaluation of research-based programs. Discusses challenges and successes working with veterans from a number of different demographics, including rural.
Date: 03/2022
Type: Document
Sponsoring organization: VA Health Services Research & Development Service
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Presents a toolkit to provide guidance for researchers looking to engage veterans in their research. Highlights successful practices and guidance for the implementation and evaluation of research-based programs. Discusses challenges and successes working with veterans from a number of different demographics, including rural.
Date: 03/2022
Type: Document
Sponsoring organization: VA Health Services Research & Development Service
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Engaging Communities Through Issues Forums: A How-To Guide for Onsite and Online Community Engagement
Offers guidance on community forums as a technical education tool, including information on planning and hosting a forum, strategies for engaging communities, and resources to support committees and stakeholders. Features examples from forums on farm vitality, farmer mental health, and family health. Requires email registration to view the guide as a flipbook, with a PDF download option at the bottom of the screen.
Author(s): Maria Pippidis, Bonnie Braun, Jessie Ketterman, Shoshanah Inwood, Nicole Wright
Date: 03/2022
Type: Document
Sponsoring organization: Cooperative Extension Service
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Offers guidance on community forums as a technical education tool, including information on planning and hosting a forum, strategies for engaging communities, and resources to support committees and stakeholders. Features examples from forums on farm vitality, farmer mental health, and family health. Requires email registration to view the guide as a flipbook, with a PDF download option at the bottom of the screen.
Author(s): Maria Pippidis, Bonnie Braun, Jessie Ketterman, Shoshanah Inwood, Nicole Wright
Date: 03/2022
Type: Document
Sponsoring organization: Cooperative Extension Service
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Navajo Philosophies and Worldviews Shape Focus Groups on the Impacts of a Mine Spill
Describes collaborative research that incorporated Navajo philosophy and worldviews into focus group examinations of the Gold King Mine spill of 2015, which impacted a river that flows through the Navajo Nation. Discusses the project's development, building community buy-in, and examining socio-cultural impacts of the disaster.
Date: 01/2022
Type: Document
Sponsoring organizations: National Institute of Environmental Health Sciences, National Institutes of Health
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Describes collaborative research that incorporated Navajo philosophy and worldviews into focus group examinations of the Gold King Mine spill of 2015, which impacted a river that flows through the Navajo Nation. Discusses the project's development, building community buy-in, and examining socio-cultural impacts of the disaster.
Date: 01/2022
Type: Document
Sponsoring organizations: National Institute of Environmental Health Sciences, National Institutes of Health
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Population Denominator Data Sources and Data for Use with HCUP Databases (Updated with 2021 Population Data)
Identifies sources of population data that can be used with Healthcare Cost and Utilization Project (HCUP) databases to calculate rates of hospital care events per population. Includes rural-urban population data sources. Appendix A, Tables A.6 and A.7 provide U.S. population figures from 2000 through 2021 for a 4-category urban-rural definition and a 6-category urban-rural definition.
Date: 2022
Type: Document
Sponsoring organization: Agency for Healthcare Research and Quality
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Identifies sources of population data that can be used with Healthcare Cost and Utilization Project (HCUP) databases to calculate rates of hospital care events per population. Includes rural-urban population data sources. Appendix A, Tables A.6 and A.7 provide U.S. population figures from 2000 through 2021 for a 4-category urban-rural definition and a 6-category urban-rural definition.
Date: 2022
Type: Document
Sponsoring organization: Agency for Healthcare Research and Quality
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Accelerating the Use of Findings from Patient-Centered Outcomes Research in Clinical Practice to Improve Health and Health Care
Offers an overview of presentations and discussion from a workshop series on patient-centered outcomes research. Topics include research methods and implementation, collaboration to support health equity, research sustainability, disseminating findings, and informing evidence-based policy making.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Offers an overview of presentations and discussion from a workshop series on patient-centered outcomes research. Topics include research methods and implementation, collaboration to support health equity, research sustainability, disseminating findings, and informing evidence-based policy making.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Innovation in Cancer Care and Cancer Research in the Context of the COVID-19 Pandemic: Proceedings of a Workshop
Shares insights from a virtual workshop that looked at short- and long-term adjustments to cancer care delivery and cancer research during the pandemic. Includes information on rural and tribal cancer care access. Discusses telehealth for cancer care, both during the pandemic and as a tool to improve access to care going forward.
Additional links: Read Online
Author(s): National Cancer Policy Forum
Date: 2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Shares insights from a virtual workshop that looked at short- and long-term adjustments to cancer care delivery and cancer research during the pandemic. Includes information on rural and tribal cancer care access. Discusses telehealth for cancer care, both during the pandemic and as a tool to improve access to care going forward.
Additional links: Read Online
Author(s): National Cancer Policy Forum
Date: 2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Traumatic Brain Injury: A Roadmap for Accelerating Progress
Provides an overview of traumatic brain injury (TBI) research. Offers recommendations to accelerate research progress and improve TBI care. Chapter 3 includes a section on TBI outcomes and access to care in rural compared to urban areas.
Additional links: Read Online
Author(s): Committee on Accelerating Progress in Traumatic Brain Injury Research and Care
Date: 2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Provides an overview of traumatic brain injury (TBI) research. Offers recommendations to accelerate research progress and improve TBI care. Chapter 3 includes a section on TBI outcomes and access to care in rural compared to urban areas.
Additional links: Read Online
Author(s): Committee on Accelerating Progress in Traumatic Brain Injury Research and Care
Date: 2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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