Rural Hospice and Palliative Care – Resources
Selected recent or important resources focusing on Rural Hospice and Palliative Care.
NHPCO Pediatric Facts and Figure, 2023 Edition
Provides an overview of pediatric hospice and palliative care in the United States. Includes information and data on patient characteristics, access to care, reimbursement, barriers and facilitators to care, and more. Section 3 compares the number and percentage of metropolitan and non-metropolitan counties with access to pediatric hospice and palliative care.
Date: 06/2023
Sponsoring organization: National Hospice and Palliative Care Organization
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Provides an overview of pediatric hospice and palliative care in the United States. Includes information and data on patient characteristics, access to care, reimbursement, barriers and facilitators to care, and more. Section 3 compares the number and percentage of metropolitan and non-metropolitan counties with access to pediatric hospice and palliative care.
Date: 06/2023
Sponsoring organization: National Hospice and Palliative Care Organization
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Hospice: CMS Flexibilities to Fight COVID-19
Outlines specific regulatory waivers and Medicare flexibilities for hospice providers issued in response to the COVID-19 pandemic. Includes information on payments for COVID-19 vaccines and therapeutics. Identifies whether each waiver or flexibility has been terminated, will end at the conclusion of the public health emergency, or has become permanent.
Date: 05/2023
Sponsoring organization: Centers for Medicare and Medicaid Services
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Outlines specific regulatory waivers and Medicare flexibilities for hospice providers issued in response to the COVID-19 pandemic. Includes information on payments for COVID-19 vaccines and therapeutics. Identifies whether each waiver or flexibility has been terminated, will end at the conclusion of the public health emergency, or has become permanent.
Date: 05/2023
Sponsoring organization: Centers for Medicare and Medicaid Services
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Palliative Care and Healthcare Utilization among Metastatic Breast Cancer Patients in U.S. Hospitals
Examines in-patient palliative care use by hospitalized metastatic breast cancer patients. Analyzes 26,961 female patients from 2010 to 2014 for palliative care use, with patient information further broken down by age, race, income, insurance type, and status of hospital utilized, such as urban teaching, urban nonteaching, or rural.
Author(s): Sun Jung Kim, Isha Patel, Chanhyun Park, Dong Yeong Shin, Jongwha Chang
Citation: Scientific Reports,13, 4358
Date: 03/2023
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Examines in-patient palliative care use by hospitalized metastatic breast cancer patients. Analyzes 26,961 female patients from 2010 to 2014 for palliative care use, with patient information further broken down by age, race, income, insurance type, and status of hospital utilized, such as urban teaching, urban nonteaching, or rural.
Author(s): Sun Jung Kim, Isha Patel, Chanhyun Park, Dong Yeong Shin, Jongwha Chang
Citation: Scientific Reports,13, 4358
Date: 03/2023
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Association of Rurality with Utilization of Palliative Care and Hospice among Medicare Beneficiaries Who Died from Pancreatic Cancer: A Cohort Study
Explores the association between the rurality of patient residence and the use of palliative care and hospice among Medicare decedents with pancreatic cancer between 2016 and 2018. Also examines the use of palliative care at least 90 days after diagnosis and before death and hospice care at least three days before death. Presents data by metropolitan, micropolitan, small town, and rural classifications.
Author(s): Niveditta Ramkumar, Qianfei Wang, Gabriel A. Brooks, et al.
Citation: Journal of Rural Health, 39(3), 557-564
Date: 01/2023
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Explores the association between the rurality of patient residence and the use of palliative care and hospice among Medicare decedents with pancreatic cancer between 2016 and 2018. Also examines the use of palliative care at least 90 days after diagnosis and before death and hospice care at least three days before death. Presents data by metropolitan, micropolitan, small town, and rural classifications.
Author(s): Niveditta Ramkumar, Qianfei Wang, Gabriel A. Brooks, et al.
Citation: Journal of Rural Health, 39(3), 557-564
Date: 01/2023
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Increasing Knowledge of Palliative Care in South Dakota
Describes the creation of the South Dakota Palliative Care Network and discusses its work to increase knowledge of palliative care among rural healthcare professionals, nursing students, and community members in the state.
Author(s): Allee Mead
Citation: Rural Monitor
Date: 11/2022
Sponsoring organization: Rural Health Information Hub
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Describes the creation of the South Dakota Palliative Care Network and discusses its work to increase knowledge of palliative care among rural healthcare professionals, nursing students, and community members in the state.
Author(s): Allee Mead
Citation: Rural Monitor
Date: 11/2022
Sponsoring organization: Rural Health Information Hub
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Impact of Concurrent Hospice Care on Primary Care Visits among Children in Southern Rural Appalachia
Explores the relationship between concurrent hospice care and primary care visits among children in southern rural Appalachia between 2011 and 2013. Describes demographic and clinical characteristics of children in hospice care in this study. Discusses the findings in relation to the children's residence in medically underresourced areas.
Author(s): Mary Lou Clark Fornehed, Radion Svynarenko, Lisa C. Lindley
Citation: Journal of Pediatric Health care, 36(5), 438-442
Date: 09/2022
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Explores the relationship between concurrent hospice care and primary care visits among children in southern rural Appalachia between 2011 and 2013. Describes demographic and clinical characteristics of children in hospice care in this study. Discusses the findings in relation to the children's residence in medically underresourced areas.
Author(s): Mary Lou Clark Fornehed, Radion Svynarenko, Lisa C. Lindley
Citation: Journal of Pediatric Health care, 36(5), 438-442
Date: 09/2022
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Hospice Care Index Technical Report
Provides an overview of the Hospice Care Index (HCI), a new Hospice Quality Reporting Program (HQRP) quality measure. Presents data and descriptive trends for the overall index score and each of the ten claims-based indicators that make up the HCI using Medicare claims data from fiscal years 2019-2021. Includes comparisons of hospices by the number of claims, decade of certification, ownership, facility type, region, and urban/rural location.
Date: 07/2022
Sponsoring organizations: Abt Associates, Centers for Medicare and Medicaid Services
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Provides an overview of the Hospice Care Index (HCI), a new Hospice Quality Reporting Program (HQRP) quality measure. Presents data and descriptive trends for the overall index score and each of the ten claims-based indicators that make up the HCI using Medicare claims data from fiscal years 2019-2021. Includes comparisons of hospices by the number of claims, decade of certification, ownership, facility type, region, and urban/rural location.
Date: 07/2022
Sponsoring organizations: Abt Associates, Centers for Medicare and Medicaid Services
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Palliative Care — More Than Just Hospice, with Karla Weng and Pat Justis
An episode of the Exploring Rural Health podcast featuring Karla Weng, Senior Program Manager for Stratis Health, and Pat Justis, Director of the Washington State Office of Rural Health. Discusses rural palliative care and an initiative to expand access in rural communities in Washington State, North Dakota, and Wisconsin.
Date: 06/2022
Sponsoring organization: Rural Health Information Hub
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An episode of the Exploring Rural Health podcast featuring Karla Weng, Senior Program Manager for Stratis Health, and Pat Justis, Director of the Washington State Office of Rural Health. Discusses rural palliative care and an initiative to expand access in rural communities in Washington State, North Dakota, and Wisconsin.
Date: 06/2022
Sponsoring organization: Rural Health Information Hub
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Developing Successful Palliative Care Teams in Rural Communities: A Facilitated Process
Discusses the importance of palliative care in rural areas. Describes a 3-year initiative led by Stratis Health to guide the development of palliative care services through rural community-based teams in North Dakota, Washington, and Wisconsin. Presents results of the initiative, including initial and follow-up assessments regarding the community's experience and expertise in components of palliative care.
Author(s): Karla Weng, Janelle Shearer, Laura Grangaard Johnson
Citation: Journal of Palliative Medicine, 25(5), 734–741
Date: 05/2022
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Discusses the importance of palliative care in rural areas. Describes a 3-year initiative led by Stratis Health to guide the development of palliative care services through rural community-based teams in North Dakota, Washington, and Wisconsin. Presents results of the initiative, including initial and follow-up assessments regarding the community's experience and expertise in components of palliative care.
Author(s): Karla Weng, Janelle Shearer, Laura Grangaard Johnson
Citation: Journal of Palliative Medicine, 25(5), 734–741
Date: 05/2022
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Integrating Serious Illness Care into Primary Care Delivery: Proceedings of a Workshop
Summarizes presentations and discussions from a June 2021 workshop on challenges and opportunities to integrate serious illness care into primary care settings. Covers the shared principles of primary and serious illness care, the interdisciplinary teams in each discipline, policy issues that serve as barriers or incentives, and best practices. Includes examples of integrating serious illness care into primary care settings in rural areas.
Additional links: Read Online
Date: 01/2022
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Summarizes presentations and discussions from a June 2021 workshop on challenges and opportunities to integrate serious illness care into primary care settings. Covers the shared principles of primary and serious illness care, the interdisciplinary teams in each discipline, policy issues that serve as barriers or incentives, and best practices. Includes examples of integrating serious illness care into primary care settings in rural areas.
Additional links: Read Online
Date: 01/2022
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Last Updated: 4/2/2025