Community Supports for Rural Aging in Place and Independent Living – Resources
Selected recent or important resources focusing on Community Supports for Rural Aging in Place and Independent Living.
Rural-Urban Differences in PACE Organization and Enrollee Characteristics
Compares differences between rural and urban Programs of All-Inclusive Care for the Elderly (PACE) and their enrollees. Presents data on enrollment, eligibility, length of time in PACE, age, and gender.
Author(s): Carrie Henning-Smith, Mariana Tuttle, Ingrid Jacobson, Madeleine Pick, Julia Interrante
Date: 01/2025
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
view details
Compares differences between rural and urban Programs of All-Inclusive Care for the Elderly (PACE) and their enrollees. Presents data on enrollment, eligibility, length of time in PACE, age, and gender.
Author(s): Carrie Henning-Smith, Mariana Tuttle, Ingrid Jacobson, Madeleine Pick, Julia Interrante
Date: 01/2025
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
view details
Partnering for Research at Your Center for Independent Living: Tips from Your Peers
Fact sheet offering nine helpful conditions for partnering for research at Centers for Independent Living (CILs) as identified by staff of rural CILs and State Independent Living Councils (SILCs). Describes how the guidance was developed and core Community-Based Participatory Research (CBPR) principles.
Author(s): Krys Standley, Hannah Pepprock, Rayna Sage
Date: 01/2025
Type: Document
view details
Fact sheet offering nine helpful conditions for partnering for research at Centers for Independent Living (CILs) as identified by staff of rural CILs and State Independent Living Councils (SILCs). Describes how the guidance was developed and core Community-Based Participatory Research (CBPR) principles.
Author(s): Krys Standley, Hannah Pepprock, Rayna Sage
Date: 01/2025
Type: Document
view details
A Toolkit for Developing Local Multisector Plans for Aging in Rural Areas
Offers 10 steps for developing a master plan for aging with rural focus, covering leadership development, community engagement, implementation planning, evaluation, and sustainability. Highlights rural-specific challenges for aging in rural communities.
Additional links: One Pager
Date: 10/2024
Type: Document
Sponsoring organization: The SCAN Foundation
view details
Offers 10 steps for developing a master plan for aging with rural focus, covering leadership development, community engagement, implementation planning, evaluation, and sustainability. Highlights rural-specific challenges for aging in rural communities.
Additional links: One Pager
Date: 10/2024
Type: Document
Sponsoring organization: The SCAN Foundation
view details
Building an Inclusive Disability Community in Rural Idaho: Stories from the Magic Valley
Case study highlighting the work of a rural Center for Independent Living (CIL) in Idaho participating in the Rural Community Living Development (RCLD), a peer support network offering mentorship. Discusses building both community relationships and individual capacity with focus on transportation, social connections, advocacy, independent living skills, and peer support.
Author(s): Lillie Greiman, Genna M. Mashinchi, E. Peterson, et al.
Date: 10/2024
Type: Document
Sponsoring organization: University of Montana: Rural Institute for Inclusive Communities
view details
Case study highlighting the work of a rural Center for Independent Living (CIL) in Idaho participating in the Rural Community Living Development (RCLD), a peer support network offering mentorship. Discusses building both community relationships and individual capacity with focus on transportation, social connections, advocacy, independent living skills, and peer support.
Author(s): Lillie Greiman, Genna M. Mashinchi, E. Peterson, et al.
Date: 10/2024
Type: Document
Sponsoring organization: University of Montana: Rural Institute for Inclusive Communities
view details
Rural Aging Action Network: Lessons from an Innovative Model for Mobilizing Whole Communities and Empowering Older Adults Across Rural America
Highlights the work of the Rural Aging Action Network (RAAN), a national collaborative that works to expand community-based services and supports to aid independence for older adults. Offers 7 steps for implementing a RAAN with a focus on continuous community involvement and ongoing evaluation.
Additional links: Summary
Author(s): Molly Wylie, Ashley Washington, Verena Cimarolli, Regan McManus, Robyn Stone
Date: 10/2024
Type: Document
Sponsoring organizations: LeadingAge, Lutheran Services in America
view details
Highlights the work of the Rural Aging Action Network (RAAN), a national collaborative that works to expand community-based services and supports to aid independence for older adults. Offers 7 steps for implementing a RAAN with a focus on continuous community involvement and ongoing evaluation.
Additional links: Summary
Author(s): Molly Wylie, Ashley Washington, Verena Cimarolli, Regan McManus, Robyn Stone
Date: 10/2024
Type: Document
Sponsoring organizations: LeadingAge, Lutheran Services in America
view details
Rural-Urban and Regional Variations in Aspects of Caregiving, Support Services and Caregiver Health in the USA: Evidence from a National Survey
Examines geographical differences in caregiving intensity, burden, health, and support based on U.S. region and rural versus urban location. Utilizes data from 3,551 informal caregivers part of the National Study of Caregiving and provides rural versus urban breakdowns of demographic information, active daily living (ADL) needs, caregiving characteristics, and more.
Author(s): Steven A Cohen, Neelam H Ahmed, Kerri A Ellis, et al.
Citation: BMJ Open, 14(10)
Date: 10/2024
Type: Document
view details
Examines geographical differences in caregiving intensity, burden, health, and support based on U.S. region and rural versus urban location. Utilizes data from 3,551 informal caregivers part of the National Study of Caregiving and provides rural versus urban breakdowns of demographic information, active daily living (ADL) needs, caregiving characteristics, and more.
Author(s): Steven A Cohen, Neelam H Ahmed, Kerri A Ellis, et al.
Citation: BMJ Open, 14(10)
Date: 10/2024
Type: Document
view details
States and Rural Communities With and Without the Program of All-Inclusive Care for the Elderly (PACE)
Results of a study measuring sociodemographic differences in locations with and without a Program of All-Inclusive Care for the Elderly (PACE) organization headquarters. Features statistics on local population characteristics with breakdowns by rural areas with and without a PACE organization headquarters, and a state-level map showing geographic distribution of PACE organizations by PACE headquarters location in rural or urban areas.
Author(s): Julia D. Interrante, Ingrid Jacobson, Madeleine Pick, Mariana Tuttle, Carrie Henning-Smith
Date: 09/2024
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
view details
Results of a study measuring sociodemographic differences in locations with and without a Program of All-Inclusive Care for the Elderly (PACE) organization headquarters. Features statistics on local population characteristics with breakdowns by rural areas with and without a PACE organization headquarters, and a state-level map showing geographic distribution of PACE organizations by PACE headquarters location in rural or urban areas.
Author(s): Julia D. Interrante, Ingrid Jacobson, Madeleine Pick, Mariana Tuttle, Carrie Henning-Smith
Date: 09/2024
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
view details
Veterans in Focus: Disability and Veterans in Rural America
Fact sheet highlighting 2018-2022 American Community Survey 5-year estimates related to rural disabled veterans. Includes data on service-connected disability, geography including rural and urban comparisons, and access to Department of Veterans Affairs (VA) healthcare facilities. Discusses opportunities for Centers for Independent Living.
Author(s): Hannah W. Pepprock, Lillie Greiman
Date: 07/2024
Type: Document
Sponsoring organization: University of Montana: Rural Institute for Inclusive Communities
view details
Fact sheet highlighting 2018-2022 American Community Survey 5-year estimates related to rural disabled veterans. Includes data on service-connected disability, geography including rural and urban comparisons, and access to Department of Veterans Affairs (VA) healthcare facilities. Discusses opportunities for Centers for Independent Living.
Author(s): Hannah W. Pepprock, Lillie Greiman
Date: 07/2024
Type: Document
Sponsoring organization: University of Montana: Rural Institute for Inclusive Communities
view details
Characteristics of People Using Medicaid Long-Term Services and Supports, 2021
Presents data on the characteristics of individuals who used Medicaid long-term services and supports (LTSS) in 2021, including age, dual-eligibility status, rural or urban residence, and race and ethnicity. Offers data on home and community-based service (HCBS) users by HCBS program and state plan option types and institutional service users by setting type.
Author(s): Cara Stepanczuk, Alexandra Carpenter, Andrea Wysocki
Date: 07/2024
Type: Document
Sponsoring organizations: Centers for Medicare and Medicaid Services, Mathematica
view details
Presents data on the characteristics of individuals who used Medicaid long-term services and supports (LTSS) in 2021, including age, dual-eligibility status, rural or urban residence, and race and ethnicity. Offers data on home and community-based service (HCBS) users by HCBS program and state plan option types and institutional service users by setting type.
Author(s): Cara Stepanczuk, Alexandra Carpenter, Andrea Wysocki
Date: 07/2024
Type: Document
Sponsoring organizations: Centers for Medicare and Medicaid Services, Mathematica
view details
Disability and Independence in Rural America: White Paper
Provides an overview of disability and independence in rural America. Describes disability prevalence in rural areas and U.S. Department of Health and Human Services (HHS) programs for people with disabilities. Outlines key considerations for rural disability services, including access, Medicaid and Medicare coverage, workforce, and telehealth and technology. Highlights themes that emerged during the September 2023 National Advisory Committee on Rural Health and Human Service (NACRHHS) meeting regarding areas for disability and independence policy improvement. Appendix A summarizes NACRHHS subcommittee site visits of two organizations serving rural Colorado residents.
Date: 07/2024
Type: Document
Sponsoring organization: National Advisory Committee on Rural Health and Human Services
view details
Provides an overview of disability and independence in rural America. Describes disability prevalence in rural areas and U.S. Department of Health and Human Services (HHS) programs for people with disabilities. Outlines key considerations for rural disability services, including access, Medicaid and Medicare coverage, workforce, and telehealth and technology. Highlights themes that emerged during the September 2023 National Advisory Committee on Rural Health and Human Service (NACRHHS) meeting regarding areas for disability and independence policy improvement. Appendix A summarizes NACRHHS subcommittee site visits of two organizations serving rural Colorado residents.
Date: 07/2024
Type: Document
Sponsoring organization: National Advisory Committee on Rural Health and Human Services
view details
Additional resources are available related to this guide. See the full list of resources by topic for:
- Aging and aging-related services
- Elderly population
- Home and community-based services
- Informal caregivers
- People with disabilities
Last Updated: 1/8/2025