Rural Health
Resources by Topic: Informal caregivers
Brief Report: Service Acquisition for Children with Autism Spectrum Disorder in Rural Southwest Virginia: The Role of Caregiver Psychoeducation
Examines access to psychoeducation (PE) for caregivers of children with autism spectrum disorder (ASD) in rural Southwest Virginia. Analyzes the impact of PE delivered by a live clinician versus paper materials and the impact on new ASD service acquisition following caregiver PE.
Author(s): Daniele C Martino, Jennifer R Bertollo, Angela Scarpa
Citation: Journal of Autism and Developmental Disorders, 56(1), 436-441
Date: 03/2024
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Examines access to psychoeducation (PE) for caregivers of children with autism spectrum disorder (ASD) in rural Southwest Virginia. Analyzes the impact of PE delivered by a live clinician versus paper materials and the impact on new ASD service acquisition following caregiver PE.
Author(s): Daniele C Martino, Jennifer R Bertollo, Angela Scarpa
Citation: Journal of Autism and Developmental Disorders, 56(1), 436-441
Date: 03/2024
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Addressing the Shortage of Direct Care Workers: Insights from Seven States
Brief assessing efforts for strengthening and identifying federal policy opportunities related to the direct care workforce through interviews with 20 stakeholders in 7 states. Discusses federal funding, collaboration, workforce pipelines, credentials, training, family caregivers, and home- and community-based services. Discusses rural throughout.
Author(s): Barbara Lyons, Molly O'Malley Watts
Date: 03/2024
Sponsoring organization: Commonwealth Fund
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Brief assessing efforts for strengthening and identifying federal policy opportunities related to the direct care workforce through interviews with 20 stakeholders in 7 states. Discusses federal funding, collaboration, workforce pipelines, credentials, training, family caregivers, and home- and community-based services. Discusses rural throughout.
Author(s): Barbara Lyons, Molly O'Malley Watts
Date: 03/2024
Sponsoring organization: Commonwealth Fund
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Behavioral Health Services Outcomes That Matter Most to Caregivers of Children, Youth, and Young Adults with Mental Health Needs
Used focus groups that included rural caregivers of children with behavioral health needs to identify behavioral health service outcomes valued by caregivers. Discusses access to care, service delivery, provider communication, caregiver training, stigma, caregiver wellness, and more. Discusses rural issues throughout.
Author(s): Genevieve Graaf, Katherine Kitchens, Millie Sweeney, Kathleen C. Thomas
Citation: International Journal of Environmental Research and Public Health, 21(2), 172
Date: 02/2024
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Used focus groups that included rural caregivers of children with behavioral health needs to identify behavioral health service outcomes valued by caregivers. Discusses access to care, service delivery, provider communication, caregiver training, stigma, caregiver wellness, and more. Discusses rural issues throughout.
Author(s): Genevieve Graaf, Katherine Kitchens, Millie Sweeney, Kathleen C. Thomas
Citation: International Journal of Environmental Research and Public Health, 21(2), 172
Date: 02/2024
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Caregiving Across the Life Course in Rural and Urban Households in the North Central Region
A recorded webinar that discusses the NCR-Stat: Caregiving Across the Life Course Survey dataset that focuses on child, adult, and elder caregiving. Survey dataset explores how caregiving impacts economic development in rural and urban communities in the North Central Region. Transcript available below description.
Author(s): Zuzana Bednarik, Shoshanah Inwood, Florence Becot
Date: 02/2024
Sponsoring organization: North Central Regional Center for Rural Development
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A recorded webinar that discusses the NCR-Stat: Caregiving Across the Life Course Survey dataset that focuses on child, adult, and elder caregiving. Survey dataset explores how caregiving impacts economic development in rural and urban communities in the North Central Region. Transcript available below description.
Author(s): Zuzana Bednarik, Shoshanah Inwood, Florence Becot
Date: 02/2024
Sponsoring organization: North Central Regional Center for Rural Development
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Supporting People with Disabilities in Rural Communities, with Rayna Sage and Catherine Ipsen
An episode of the Exploring Rural Health podcast featuring Rayna Sage, PhD, and Catherine Ipsen, PhD, co-directors of the Research and Training Center on Disability in Rural Communities at the University of Montana. Focuses on the challenges facing rural people with disabilities and services and support systems that enable them to achieve and maintain quality of life.
Date: 01/2024
Sponsoring organization: Rural Health Information Hub
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An episode of the Exploring Rural Health podcast featuring Rayna Sage, PhD, and Catherine Ipsen, PhD, co-directors of the Research and Training Center on Disability in Rural Communities at the University of Montana. Focuses on the challenges facing rural people with disabilities and services and support systems that enable them to achieve and maintain quality of life.
Date: 01/2024
Sponsoring organization: Rural Health Information Hub
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Compendium of Best Practices for Rural Age-Friendly Care
Offers best practices, models of care, policies, and more related to offering age-friendly care in rural settings. Covers care coordination, caregiving support, behavioral health, community programming, community health workers, the 4Ms, and state-level priorities.
Date: 2024
Sponsoring organizations: National Rural Health Association, The John A. Hartford Foundation
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Offers best practices, models of care, policies, and more related to offering age-friendly care in rural settings. Covers care coordination, caregiving support, behavioral health, community programming, community health workers, the 4Ms, and state-level priorities.
Date: 2024
Sponsoring organizations: National Rural Health Association, The John A. Hartford Foundation
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2024 Chartbook: Supporting Native Elders in Their Communities: Title VI Native American Aging Programs and Services
Offers findings from the 2023 Title VI Native American Aging Program Survey. Discusses service provision, nutrition and traditional foods, services and supports for caregivers, transportation, elder abuse, program staffing and funding, and partnerships.
Date: 2024
Sponsoring organization: USAging
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Offers findings from the 2023 Title VI Native American Aging Program Survey. Discusses service provision, nutrition and traditional foods, services and supports for caregivers, transportation, elder abuse, program staffing and funding, and partnerships.
Date: 2024
Sponsoring organization: USAging
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Sociodemographic Differences in COVID-19 Pandemic Experiences Among Families in the United States
Examines challenges experienced by individuals during the COVID-19 pandemic according to sociodemographic differences. Analyzes survey data focused on children and caregivers and their experiences with infection and testing, healthcare, school, access to food, child care and work, financial concerns, and more. Data is broken down by demographic variables such as caregiver education, age of children, and rural versus urban location.
Author(s): Kaja Z. LeWinn, Leonardo Trasande, Andrew Law, et al.
Citation: JAMA Network Open, 6(8), e2330495
Date: 08/2023
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Examines challenges experienced by individuals during the COVID-19 pandemic according to sociodemographic differences. Analyzes survey data focused on children and caregivers and their experiences with infection and testing, healthcare, school, access to food, child care and work, financial concerns, and more. Data is broken down by demographic variables such as caregiver education, age of children, and rural versus urban location.
Author(s): Kaja Z. LeWinn, Leonardo Trasande, Andrew Law, et al.
Citation: JAMA Network Open, 6(8), e2330495
Date: 08/2023
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Exploring the Other Side of Alzheimer's Disease and Related Dementia: Informal Caregivers
Provides national data on Alzheimer's Disease and Related Dementia (ADRD) informal caregivers. Includes information on metro versus nonmetro caregiver relationship to patient, sex, age, education, marital status, types of caregiving, and amount of time caregiving, utilizing data from the National Health and Aging Trends Study.
Author(s): Adee Athiyaman
Date: 08/2023
Sponsoring organization: Illinois Institute for Rural Affairs
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Provides national data on Alzheimer's Disease and Related Dementia (ADRD) informal caregivers. Includes information on metro versus nonmetro caregiver relationship to patient, sex, age, education, marital status, types of caregiving, and amount of time caregiving, utilizing data from the National Health and Aging Trends Study.
Author(s): Adee Athiyaman
Date: 08/2023
Sponsoring organization: Illinois Institute for Rural Affairs
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Palliative Care Needs and Preferences of Older Adults with Advanced or Serious Chronic Illnesses and their Families in Rural Communities of Indiana, USA
Presents the experiences of caregivers in rural Indiana related to palliative care, the needs of older adults with chronic illnesses, and the impacts on their families. Discusses themes such as managing pain, caregiver trust, distance and access to care, managing difficult conversations, caregiver burden, and use of telehealth in rural areas.
Author(s): Nasreen Lalani, Kawther Hamash, Yitong Wang
Citation: Journal of Rural Health, 40(2), 368-375
Date: 08/2023
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Presents the experiences of caregivers in rural Indiana related to palliative care, the needs of older adults with chronic illnesses, and the impacts on their families. Discusses themes such as managing pain, caregiver trust, distance and access to care, managing difficult conversations, caregiver burden, and use of telehealth in rural areas.
Author(s): Nasreen Lalani, Kawther Hamash, Yitong Wang
Citation: Journal of Rural Health, 40(2), 368-375
Date: 08/2023
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