Rural Health
Resources by Topic: Informal caregivers
National Advisory Council on the National Health Service Corps (NACNHSC) Meeting Minutes, November 15-16, 2022
Minutes from the November 15-16, 2022 meeting, including presentations on collaborative care, shortage designation policy, HRSA's geriatrics programs, family caregivers, effects of COVID-19, and National Health Service Corps updates.
Additional links: Agenda, Caring for the Care Collaborator: Building and Sustaining the Competent Team, Health Resources and Services Administration's Geriatrics Programs, Leading In Challenging Times… Creating the Future We Want and Our Communities and Patients Need, Policy Updates, Preparing Clinicians to "R.A.I.S.E." Family Caregivers
Date: 11/2022
Type: Document
Sponsoring organization: National Advisory Council on the National Health Service Corps
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Minutes from the November 15-16, 2022 meeting, including presentations on collaborative care, shortage designation policy, HRSA's geriatrics programs, family caregivers, effects of COVID-19, and National Health Service Corps updates.
Additional links: Agenda, Caring for the Care Collaborator: Building and Sustaining the Competent Team, Health Resources and Services Administration's Geriatrics Programs, Leading In Challenging Times… Creating the Future We Want and Our Communities and Patients Need, Policy Updates, Preparing Clinicians to "R.A.I.S.E." Family Caregivers
Date: 11/2022
Type: Document
Sponsoring organization: National Advisory Council on the National Health Service Corps
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2022 National Strategy to Support Family Caregivers
Report details and defines a national support strategy for family caregivers of all ages. Highlights strategies for caring for children, elderly adults, people with disabilities, people with chronic conditions, and post-acute conditions, among others. Also, discusses recommendations for caregivers residing in rural and underserved areas.
Additional links: Actions for States, Communities, and Others, Federal Actions, First Principles: Cross-Cutting Considerations for Family Caregiver Support
Date: 09/2022
Type: Document
Sponsoring organization: Administration for Community Living
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Report details and defines a national support strategy for family caregivers of all ages. Highlights strategies for caring for children, elderly adults, people with disabilities, people with chronic conditions, and post-acute conditions, among others. Also, discusses recommendations for caregivers residing in rural and underserved areas.
Additional links: Actions for States, Communities, and Others, Federal Actions, First Principles: Cross-Cutting Considerations for Family Caregiver Support
Date: 09/2022
Type: Document
Sponsoring organization: Administration for Community Living
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Family Caregiving for People with Cancer and Other Serious Illnesses: Proceedings of a Workshop
Reports on a May 2022 workshop exploring issues related to family caregivers and developing strategies to support and recognize their role in caring for their loved ones with cancer or other chronic illnesses. Discusses the increased role of family caregivers in rural and tribal communities and the importance of providing services, addressing social determinants of health, and allocating funding to better support family caregivers in these communities.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 05/2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Reports on a May 2022 workshop exploring issues related to family caregivers and developing strategies to support and recognize their role in caring for their loved ones with cancer or other chronic illnesses. Discusses the increased role of family caregivers in rural and tribal communities and the importance of providing services, addressing social determinants of health, and allocating funding to better support family caregivers in these communities.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 05/2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Differences in Distress Between Rural and Non-rural Appalachian Breast Cancer Patient / Caregiver Dyads During the First Year of Treatment
Results of a pilot study measuring self-reported anxiety, depression, and caregiver strain among 48 Appalachian breast cancer patients and their caregivers, as identified by the University of Tennessee Medical Center from 2019-2020. Features demographics and statistics on types of psychological distress at baseline, 6-week, 6-month, and 12-month time frames, with breakdowns by rural or nonrural location.
Author(s): Jordan Tasman, Callie D. McAdams, Jillian Lloyd, Ashton J. Brooks, Patricia Nola Eugene Roberson
Citation: Journal of Appalachian Health, 4(3), 56-70
Date: 03/2022
Type: Document
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Results of a pilot study measuring self-reported anxiety, depression, and caregiver strain among 48 Appalachian breast cancer patients and their caregivers, as identified by the University of Tennessee Medical Center from 2019-2020. Features demographics and statistics on types of psychological distress at baseline, 6-week, 6-month, and 12-month time frames, with breakdowns by rural or nonrural location.
Author(s): Jordan Tasman, Callie D. McAdams, Jillian Lloyd, Ashton J. Brooks, Patricia Nola Eugene Roberson
Citation: Journal of Appalachian Health, 4(3), 56-70
Date: 03/2022
Type: Document
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What We Know (and Don't Know) About Caregiving in Rural America
Webinar offering an overview of informal caregiving for rural residents. Describes the tasks associated with caregiving, rural caregiving data and available research, mental health, cancer related caregiving, and rural and urban comparisons. Includes North Carolina-based caregiving projects. Transcript available in the video description.
Date: 02/2022
Type: Video/Multimedia
Sponsoring organization: North Carolina Rural Health Research Program
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Webinar offering an overview of informal caregiving for rural residents. Describes the tasks associated with caregiving, rural caregiving data and available research, mental health, cancer related caregiving, and rural and urban comparisons. Includes North Carolina-based caregiving projects. Transcript available in the video description.
Date: 02/2022
Type: Video/Multimedia
Sponsoring organization: North Carolina Rural Health Research Program
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State Summaries of Lifespan Respite Grant Activities and Outcomes: Final Reports, FY2017 – FY2018 Grantees
Summaries of final reports from the fiscal year 2017 and 2018 Administration for Community Living (ACL) State Lifespan Respite Care program grantees. The State Lifespan Respite Care program aims to create coordinated systems of accessible, community-based respite care services for family caregivers of children and adults of all ages with special needs. Describes each of the project's outcomes, accomplishments, and partnerships. Highlights programs serving rural areas.
Date: 2022
Type: Document
Sponsoring organization: ARCH National Respite Network and Resource Center
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Summaries of final reports from the fiscal year 2017 and 2018 Administration for Community Living (ACL) State Lifespan Respite Care program grantees. The State Lifespan Respite Care program aims to create coordinated systems of accessible, community-based respite care services for family caregivers of children and adults of all ages with special needs. Describes each of the project's outcomes, accomplishments, and partnerships. Highlights programs serving rural areas.
Date: 2022
Type: Document
Sponsoring organization: ARCH National Respite Network and Resource Center
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Rural Wisconsin Caregiver Resources Toolkit 2022
Compendium of resources intended to help caregivers find the information they need to perform their caregiving roles effectively. Includes resources to help caregivers perform medical and nursing tasks, resources relating to advance directives and power of attorney, links to a broad range of Wisconsin and national caregiver resources, and resources intended to help caregivers address their own health and wellbeing.
Date: 2022
Type: Document
Sponsoring organization: Rural Wisconsin Health Cooperative
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Compendium of resources intended to help caregivers find the information they need to perform their caregiving roles effectively. Includes resources to help caregivers perform medical and nursing tasks, resources relating to advance directives and power of attorney, links to a broad range of Wisconsin and national caregiver resources, and resources intended to help caregivers address their own health and wellbeing.
Date: 2022
Type: Document
Sponsoring organization: Rural Wisconsin Health Cooperative
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The State of the World's Children 2021 - On My Mind: Promoting, Protecting and Caring for Children's Mental Health
Examines child, adolescent, and caregiver mental health, focusing on risks and protective factors at critical moments in the life course. Discusses COVID-19's effect on mental health, and the social determinants that shape mental health and well-being. Features statistics on child mortality rates, maternal and child health, HIV/AIDS, nutrition, early childhood development, and education, with breakdowns by countries and territories including Palau, Samoa, Federated States of Micronesia, and the Marshall Islands.
Date: 10/2021
Type: Document
Sponsoring organization: United Nations Children's Fund (UNICEF)
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Examines child, adolescent, and caregiver mental health, focusing on risks and protective factors at critical moments in the life course. Discusses COVID-19's effect on mental health, and the social determinants that shape mental health and well-being. Features statistics on child mortality rates, maternal and child health, HIV/AIDS, nutrition, early childhood development, and education, with breakdowns by countries and territories including Palau, Samoa, Federated States of Micronesia, and the Marshall Islands.
Date: 10/2021
Type: Document
Sponsoring organization: United Nations Children's Fund (UNICEF)
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Psychosocial Predictors of Adverse Outcomes in Rural Heart Failure Caregivers
Results of a study of 114 rural and 426 urban caregivers in the southeastern United States, to examine whether social support, problem solving, and family function affected burden in caregivers of individuals with heart failure. Features demographic statistics and descriptive differences with breakdowns between urban and rural caregivers.
Author(s): Joan S. Grant, Lucinda J. Graven, Glenna Schluck, Laurie Abbott
Citation: Rural and Remote Health, 21(3), 6497
Date: 07/2021
Type: Document
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Results of a study of 114 rural and 426 urban caregivers in the southeastern United States, to examine whether social support, problem solving, and family function affected burden in caregivers of individuals with heart failure. Features demographic statistics and descriptive differences with breakdowns between urban and rural caregivers.
Author(s): Joan S. Grant, Lucinda J. Graven, Glenna Schluck, Laurie Abbott
Citation: Rural and Remote Health, 21(3), 6497
Date: 07/2021
Type: Document
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Remote Patient Monitoring Helps Rural Patients Recover at Home
Features Essentia Health's remote patient monitoring program, which allows patients to recover at home while still having access to medical attention. Describes how the program was used to treat COVID-19 patients, with plans to continue the program to treat other chronic diseases.
Author(s): Allee Mead
Citation: Rural Monitor
Date: 07/2021
Type: Document
Sponsoring organization: Rural Health Information Hub
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Features Essentia Health's remote patient monitoring program, which allows patients to recover at home while still having access to medical attention. Describes how the program was used to treat COVID-19 patients, with plans to continue the program to treat other chronic diseases.
Author(s): Allee Mead
Citation: Rural Monitor
Date: 07/2021
Type: Document
Sponsoring organization: Rural Health Information Hub
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