Rural Health
Resources by Topic: Informal caregivers
What We Know (and Don't Know) About Caregiving in Rural America
Webinar offering an overview of informal caregiving for rural residents. Describes the tasks associated with caregiving, rural caregiving data and available research, mental health, cancer related caregiving, and rural and urban comparisons. Includes North Carolina-based caregiving projects. Transcript available in the video description.
Date: 02/2022
Type: Video/Multimedia
Sponsoring organization: North Carolina Rural Health Research Program
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Webinar offering an overview of informal caregiving for rural residents. Describes the tasks associated with caregiving, rural caregiving data and available research, mental health, cancer related caregiving, and rural and urban comparisons. Includes North Carolina-based caregiving projects. Transcript available in the video description.
Date: 02/2022
Type: Video/Multimedia
Sponsoring organization: North Carolina Rural Health Research Program
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State Summaries of Lifespan Respite Grant Activities and Outcomes: Final Reports, FY2017 – FY2018 Grantees
Summaries of final reports from the fiscal year 2017 and 2018 Administration for Community Living (ACL) State Lifespan Respite Care program grantees. The State Lifespan Respite Care program aims to create coordinated systems of accessible, community-based respite care services for family caregivers of children and adults of all ages with special needs. Describes each of the project's outcomes, accomplishments, and partnerships. Highlights programs serving rural areas.
Date: 2022
Type: Document
Sponsoring organization: ARCH National Respite Network and Resource Center
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Summaries of final reports from the fiscal year 2017 and 2018 Administration for Community Living (ACL) State Lifespan Respite Care program grantees. The State Lifespan Respite Care program aims to create coordinated systems of accessible, community-based respite care services for family caregivers of children and adults of all ages with special needs. Describes each of the project's outcomes, accomplishments, and partnerships. Highlights programs serving rural areas.
Date: 2022
Type: Document
Sponsoring organization: ARCH National Respite Network and Resource Center
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Rural Wisconsin Caregiver Resources Toolkit 2022
Compendium of resources intended to help caregivers find the information they need to perform their caregiving roles effectively. Includes resources to help caregivers perform medical and nursing tasks, resources relating to advance directives and power of attorney, links to a broad range of Wisconsin and national caregiver resources, and resources intended to help caregivers address their own health and wellbeing.
Date: 2022
Type: Document
Sponsoring organization: Rural Wisconsin Health Cooperative
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Compendium of resources intended to help caregivers find the information they need to perform their caregiving roles effectively. Includes resources to help caregivers perform medical and nursing tasks, resources relating to advance directives and power of attorney, links to a broad range of Wisconsin and national caregiver resources, and resources intended to help caregivers address their own health and wellbeing.
Date: 2022
Type: Document
Sponsoring organization: Rural Wisconsin Health Cooperative
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The State of the World's Children 2021 - On My Mind: Promoting, Protecting and Caring for Children's Mental Health
Examines child, adolescent, and caregiver mental health, focusing on risks and protective factors at critical moments in the life course. Discusses COVID-19's effect on mental health, and the social determinants that shape mental health and well-being. Features statistics on child mortality rates, maternal and child health, HIV/AIDS, nutrition, early childhood development, and education, with breakdowns by countries and territories including Palau, Samoa, Federated States of Micronesia, and the Marshall Islands.
Date: 10/2021
Type: Document
Sponsoring organization: United Nations Children's Fund (UNICEF)
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Examines child, adolescent, and caregiver mental health, focusing on risks and protective factors at critical moments in the life course. Discusses COVID-19's effect on mental health, and the social determinants that shape mental health and well-being. Features statistics on child mortality rates, maternal and child health, HIV/AIDS, nutrition, early childhood development, and education, with breakdowns by countries and territories including Palau, Samoa, Federated States of Micronesia, and the Marshall Islands.
Date: 10/2021
Type: Document
Sponsoring organization: United Nations Children's Fund (UNICEF)
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Psychosocial Predictors of Adverse Outcomes in Rural Heart Failure Caregivers
Results of a study of 114 rural and 426 urban caregivers in the southeastern United States, to examine whether social support, problem solving, and family function affected burden in caregivers of individuals with heart failure. Features demographic statistics and descriptive differences with breakdowns between urban and rural caregivers.
Author(s): Joan S. Grant, Lucinda J. Graven, Glenna Schluck, Laurie Abbott
Citation: Rural and Remote Health, 21(3), 6497
Date: 07/2021
Type: Document
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Results of a study of 114 rural and 426 urban caregivers in the southeastern United States, to examine whether social support, problem solving, and family function affected burden in caregivers of individuals with heart failure. Features demographic statistics and descriptive differences with breakdowns between urban and rural caregivers.
Author(s): Joan S. Grant, Lucinda J. Graven, Glenna Schluck, Laurie Abbott
Citation: Rural and Remote Health, 21(3), 6497
Date: 07/2021
Type: Document
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Remote Patient Monitoring Helps Rural Patients Recover at Home
Features Essentia Health's remote patient monitoring program, which allows patients to recover at home while still having access to medical attention. Describes how the program was used to treat COVID-19 patients, with plans to continue the program to treat other chronic diseases.
Author(s): Allee Mead
Citation: Rural Monitor
Date: 07/2021
Type: Document
Sponsoring organization: Rural Health Information Hub
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Features Essentia Health's remote patient monitoring program, which allows patients to recover at home while still having access to medical attention. Describes how the program was used to treat COVID-19 patients, with plans to continue the program to treat other chronic diseases.
Author(s): Allee Mead
Citation: Rural Monitor
Date: 07/2021
Type: Document
Sponsoring organization: Rural Health Information Hub
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Preferences for Long-Term Care Arrangements among Rural and Urban Older Adults
Describes long-term care preferences of 4,333 older people with functional limitations. Features statistics on characteristics of respondents, with breakdowns by urban or rural location.
Author(s): Carrie Henning-Smith, John Mulcahy, Megan Lahr, Jill Tanem
Date: 05/2021
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
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Describes long-term care preferences of 4,333 older people with functional limitations. Features statistics on characteristics of respondents, with breakdowns by urban or rural location.
Author(s): Carrie Henning-Smith, John Mulcahy, Megan Lahr, Jill Tanem
Date: 05/2021
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
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Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers: A Way Forward
Examines the existing evidence on care interventions, services, and supports for people with dementia and their caregivers. Discusses gaps in the current evidence base and opportunities for future research. Describes interventions that can be implemented in a variety of settings to continue to expand the evidence base. Includes rural references and considerations throughout.
Additional links: Read Online
Date: 02/2021
Type: Document
Sponsoring organization: National Academies of Sciences, Engineering, and Medicine
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Examines the existing evidence on care interventions, services, and supports for people with dementia and their caregivers. Discusses gaps in the current evidence base and opportunities for future research. Describes interventions that can be implemented in a variety of settings to continue to expand the evidence base. Includes rural references and considerations throughout.
Additional links: Read Online
Date: 02/2021
Type: Document
Sponsoring organization: National Academies of Sciences, Engineering, and Medicine
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Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences
Summarizes results of a survey of social and behavioral research on preventing or slowing the development of dementia and reducing its social and economic impact on dementia patients and caregivers. Offers recommendations on research priorities to improve the lives of those affected by dementia. Includes rural references throughout.
Additional links: Read Online
Date: 2021
Type: Document
Sponsoring organization: National Academies of Sciences, Engineering, and Medicine
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Summarizes results of a survey of social and behavioral research on preventing or slowing the development of dementia and reducing its social and economic impact on dementia patients and caregivers. Offers recommendations on research priorities to improve the lives of those affected by dementia. Includes rural references throughout.
Additional links: Read Online
Date: 2021
Type: Document
Sponsoring organization: National Academies of Sciences, Engineering, and Medicine
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Challenges and Facilitators of Hospice Decision-making: A Retrospective Review of Family Caregivers of Home Hospice Patients in a Rural US-Mexico Border Region - A Qualitative Study
Highlights a study on hospice care utilization in the rural U.S.-Mexico border region of Southern California. Explores the decisions made by family care givers around hospice care and discusses the factors that shaped those decisions.
Author(s): Eunjeong Ko, Dahlia Fuentes, Savitri Singh-Carlson, Frances Nedjat-Haiem
Citation: BMJ Open, 10(7), e035634
Date: 07/2020
Type: Document
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Highlights a study on hospice care utilization in the rural U.S.-Mexico border region of Southern California. Explores the decisions made by family care givers around hospice care and discusses the factors that shaped those decisions.
Author(s): Eunjeong Ko, Dahlia Fuentes, Savitri Singh-Carlson, Frances Nedjat-Haiem
Citation: BMJ Open, 10(7), e035634
Date: 07/2020
Type: Document
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