Rural Health
Resources by Topic: Informal caregivers
2024 Chartbook: Supporting Native Elders in Their Communities: Title VI Native American Aging Programs and Services
Offers findings from the 2023 Title VI Native American Aging Program Survey. Discusses service provision, nutrition and traditional foods, services and supports for caregivers, transportation, elder abuse, program staffing and funding, and partnerships.
Date: 2024
Type: Document
Sponsoring organization: USAging
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Offers findings from the 2023 Title VI Native American Aging Program Survey. Discusses service provision, nutrition and traditional foods, services and supports for caregivers, transportation, elder abuse, program staffing and funding, and partnerships.
Date: 2024
Type: Document
Sponsoring organization: USAging
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2024 Alzheimer's Disease Facts and Figures
Provides an overview of Alzheimer's disease in the United States, including prevalence, mortality and morbidity, and issues related to caregivers of persons with Alzheimer's. Includes discussions about challenges of the disease for patients, providers, and caregivers in rural areas.
Author(s): Joseph Gaugler, Bryan James, Tricia Johnson, et al.
Date: 2024
Type: Document
Sponsoring organization: Alzheimer's Association
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Provides an overview of Alzheimer's disease in the United States, including prevalence, mortality and morbidity, and issues related to caregivers of persons with Alzheimer's. Includes discussions about challenges of the disease for patients, providers, and caregivers in rural areas.
Author(s): Joseph Gaugler, Bryan James, Tricia Johnson, et al.
Date: 2024
Type: Document
Sponsoring organization: Alzheimer's Association
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Sociodemographic Differences in COVID-19 Pandemic Experiences Among Families in the United States
Examines challenges experienced by individuals during the COVID-19 pandemic according to sociodemographic differences. Analyzes survey data focused on children and caregivers and their experiences with infection and testing, healthcare, school, access to food, child care and work, financial concerns, and more. Data is broken down by demographic variables such as caregiver education, age of children, and rural versus urban location.
Author(s): Kaja Z. LeWinn, Leonardo Trasande, Andrew Law, et al.
Citation: JAMA Network Open, 6(8)
Date: 08/2023
Type: Document
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Examines challenges experienced by individuals during the COVID-19 pandemic according to sociodemographic differences. Analyzes survey data focused on children and caregivers and their experiences with infection and testing, healthcare, school, access to food, child care and work, financial concerns, and more. Data is broken down by demographic variables such as caregiver education, age of children, and rural versus urban location.
Author(s): Kaja Z. LeWinn, Leonardo Trasande, Andrew Law, et al.
Citation: JAMA Network Open, 6(8)
Date: 08/2023
Type: Document
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Exploring the Other Side of Alzheimer's Disease and Related Dementia: Informal Caregivers
Provides national data on Alzheimer's Disease and Related Dementia (ADRD) informal caregivers. Includes information on metro versus nonmetro caregiver relationship to patient, gender, age, education, marital status, types of caregiving, and amount of time caregiving, utilizing data from the National Health and Aging Trends Study.
Author(s): Adee Athiyaman
Date: 08/2023
Type: Document
Sponsoring organization: Illinois Institute for Rural Affairs
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Provides national data on Alzheimer's Disease and Related Dementia (ADRD) informal caregivers. Includes information on metro versus nonmetro caregiver relationship to patient, gender, age, education, marital status, types of caregiving, and amount of time caregiving, utilizing data from the National Health and Aging Trends Study.
Author(s): Adee Athiyaman
Date: 08/2023
Type: Document
Sponsoring organization: Illinois Institute for Rural Affairs
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Palliative Care Needs and Preferences of Older Adults with Advanced or Serious Chronic Illnesses and their Families in Rural Communities of Indiana, USA
Presents the experiences of caregivers in rural Indiana related to palliative care, the needs of older adults with chronic illnesses, and the impacts on their families. Discusses themes such as managing pain, caregiver trust, distance and access to care, managing difficult conversations, caregiver burden, and use of telehealth in rural areas.
Author(s): Nasreen Lalani, Kawther Hamash, Yitong Wang
Citation: Journal of Rural Health, 40(2), 368-375
Date: 08/2023
Type: Document
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Presents the experiences of caregivers in rural Indiana related to palliative care, the needs of older adults with chronic illnesses, and the impacts on their families. Discusses themes such as managing pain, caregiver trust, distance and access to care, managing difficult conversations, caregiver burden, and use of telehealth in rural areas.
Author(s): Nasreen Lalani, Kawther Hamash, Yitong Wang
Citation: Journal of Rural Health, 40(2), 368-375
Date: 08/2023
Type: Document
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Arkansas State Plan on Aging: Fiscal Years 2024-2027
Provides direction for long-term care efforts in the state of Arkansas. Focuses on implementation of the Older American Act (OAA), COVID-19 recovery, equity, access to home and community-based services, and caregiving infrastructure. Highlights population data on rural Arkansas citizens and rural-specific priorities.
Date: 06/2023
Type: Document
Sponsoring organization: Arkansas Department of Human Services
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Provides direction for long-term care efforts in the state of Arkansas. Focuses on implementation of the Older American Act (OAA), COVID-19 recovery, equity, access to home and community-based services, and caregiving infrastructure. Highlights population data on rural Arkansas citizens and rural-specific priorities.
Date: 06/2023
Type: Document
Sponsoring organization: Arkansas Department of Human Services
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Listening to Riders and Providers: A Synthesis Report on NADTC's Focus Groups and Stakeholder Meetings
Summarizes findings from four focus groups exploring how perceptions of transportation users may be impacted by race, ethnicity, culture, or other personal characteristics. Presents findings from older adults, younger adults with disabilities, and caregivers. Also reports on stakeholder meetings with urban/suburban and rural stakeholders. Identifies lessons learned and next steps to inform transportation diversity, equity, and inclusion efforts.
Date: 02/2023
Type: Document
Sponsoring organization: National Aging and Disability Transportation Center
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Summarizes findings from four focus groups exploring how perceptions of transportation users may be impacted by race, ethnicity, culture, or other personal characteristics. Presents findings from older adults, younger adults with disabilities, and caregivers. Also reports on stakeholder meetings with urban/suburban and rural stakeholders. Identifies lessons learned and next steps to inform transportation diversity, equity, and inclusion efforts.
Date: 02/2023
Type: Document
Sponsoring organization: National Aging and Disability Transportation Center
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Perceived Benefits of Geriatric Specialty Telemedicine among Rural Patients and Caregivers
Explores the perceived benefits of a Veterans Health Administration (VHA) geriatric specialty telemedicine service (GRECC Connect), which connects geriatric interdisciplinary teams in urban areas with older veterans in rural areas through videoconferencing platforms. Summarizes results of interviews 30 rural older adults enrolled in the VHA and their caregivers about the content and quality of their GRECC Connect visits.
Author(s): Eileen M. Dryden, Meaghan A. Kennedy, Jennifer Conti, et al.
Citation: Health Services Research, 58(Suppl 1), 26-35
Date: 02/2023
Type: Document
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Explores the perceived benefits of a Veterans Health Administration (VHA) geriatric specialty telemedicine service (GRECC Connect), which connects geriatric interdisciplinary teams in urban areas with older veterans in rural areas through videoconferencing platforms. Summarizes results of interviews 30 rural older adults enrolled in the VHA and their caregivers about the content and quality of their GRECC Connect visits.
Author(s): Eileen M. Dryden, Meaghan A. Kennedy, Jennifer Conti, et al.
Citation: Health Services Research, 58(Suppl 1), 26-35
Date: 02/2023
Type: Document
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Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) Meeting Minutes, January 19-20, 2023
Summarizes the Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) meeting held on January 19-20, 2023. Includes presentations and discussions on the Administration for Community Living (ACL) and the National Caregiver Strategy, age-friendly public health systems, the Area Health Education Centers (AHEC) Program, and Title VII mental and behavioral health education and training programs. Includes rural references throughout.
Date: 01/2023
Type: Document
Sponsoring organization: Advisory Committee on Interdisciplinary Community-Based Linkages
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Summarizes the Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) meeting held on January 19-20, 2023. Includes presentations and discussions on the Administration for Community Living (ACL) and the National Caregiver Strategy, age-friendly public health systems, the Area Health Education Centers (AHEC) Program, and Title VII mental and behavioral health education and training programs. Includes rural references throughout.
Date: 01/2023
Type: Document
Sponsoring organization: Advisory Committee on Interdisciplinary Community-Based Linkages
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National Community Care Corps Supporting Healthy Community Living: 2022-2023 Grantee Snapshots
Overview of funded projects related to volunteer programs intended to assist family caregivers, the elderly, and people with disabilities. Projects include training, respite, transportation, home modification, and more. Includes rural specific projects.
Date: 2023
Type: Document
Sponsoring organization: Community Care Corps
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Overview of funded projects related to volunteer programs intended to assist family caregivers, the elderly, and people with disabilities. Projects include training, respite, transportation, home modification, and more. Includes rural specific projects.
Date: 2023
Type: Document
Sponsoring organization: Community Care Corps
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