Rural Health
Resources by Topic: Informal caregivers
Palliative Care for Patients with Heart Failure and Family Caregivers in Rural Appalachia: A Randomized Controlled Trial
Evaluates FamPALcare, a telephone coaching intervention for family caregivers who provide palliative care to patients with heart failure (HF) in rural Appalachia. Provides data on patients' HF-related physical health and depression/anxiety, caregivers' caregiving burden and depression/anxiety, and intervention helpfulness at 3 and 6 months.
Author(s): Ubolrat Piamjariyakul, Angel Smothers, Kesheng Wang, et al.
Citation: BMC Palliative Care, 23, 199
Date: 08/2024
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Evaluates FamPALcare, a telephone coaching intervention for family caregivers who provide palliative care to patients with heart failure (HF) in rural Appalachia. Provides data on patients' HF-related physical health and depression/anxiety, caregivers' caregiving burden and depression/anxiety, and intervention helpfulness at 3 and 6 months.
Author(s): Ubolrat Piamjariyakul, Angel Smothers, Kesheng Wang, et al.
Citation: BMC Palliative Care, 23, 199
Date: 08/2024
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Caregiver Recruitment Strategies for Interventions Designed to Optimize Transitions from Hospital to Home: Lessons from a Randomized Trial
Compares in-person and virtual recruitment strategies for a video-based intervention for family caregivers (FCGs) to improve transitional palliative care for critically ill patients in rural Minnesota, Wisconsin, and Iowa. Includes data on effectiveness of each strategy and diversity of recruited FCGs.
Author(s): Allison M. Gustavson, Molly J. Horstman, et al.
Citation: Trials, 25, 454
Date: 07/2024
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Compares in-person and virtual recruitment strategies for a video-based intervention for family caregivers (FCGs) to improve transitional palliative care for critically ill patients in rural Minnesota, Wisconsin, and Iowa. Includes data on effectiveness of each strategy and diversity of recruited FCGs.
Author(s): Allison M. Gustavson, Molly J. Horstman, et al.
Citation: Trials, 25, 454
Date: 07/2024
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Community Health Needs and Opportunities in Rural Central New York
Reports on community health in central New York's Cayuga, Cortland, Madison, and Oswego counties. Discusses issues related to rural access to care, funding, and health workforce supply. Highlights health disparities affecting rural Black, Hispanic, multiracial, LGB, and disabled people. Includes sections dedicated to perinatal health, oral health, mental health and substance use, and medical and nonmedical home care.
Date: 06/2024
Sponsoring organization: Health Foundation for Western & Central New York
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Reports on community health in central New York's Cayuga, Cortland, Madison, and Oswego counties. Discusses issues related to rural access to care, funding, and health workforce supply. Highlights health disparities affecting rural Black, Hispanic, multiracial, LGB, and disabled people. Includes sections dedicated to perinatal health, oral health, mental health and substance use, and medical and nonmedical home care.
Date: 06/2024
Sponsoring organization: Health Foundation for Western & Central New York
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State Innovations to Advance Respite Care: Policy Strategies Shared at the State-Federal Respite Summit
Presents strategies utilized by states to improve access to and quality of respite care services for family caregivers. Strategies cover awareness and outreach, respite workforce education, and serving diverse populations. Highlights strategies from Colorado, North Dakota, and Oklahoma focused on rural areas.
Author(s): Kimberly Hodges, Ella Taggart, Salom Teshale
Date: 05/2024
Sponsoring organization: National Academy for State Health Policy
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Presents strategies utilized by states to improve access to and quality of respite care services for family caregivers. Strategies cover awareness and outreach, respite workforce education, and serving diverse populations. Highlights strategies from Colorado, North Dakota, and Oklahoma focused on rural areas.
Author(s): Kimberly Hodges, Ella Taggart, Salom Teshale
Date: 05/2024
Sponsoring organization: National Academy for State Health Policy
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Addressing the Shortage of Direct Care Workers: Insights from Seven States
Brief assessing efforts for strengthening and identifying federal policy opportunities related to the direct care workforce through interviews with 20 stakeholders in 7 states. Discusses federal funding, collaboration, workforce pipelines, equity, credentials, training, family caregivers, and home- and community-based services. Discusses rural throughout.
Author(s): Barbara Lyons, Molly O'Malley Watts
Date: 03/2024
Sponsoring organization: Commonwealth Fund
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Brief assessing efforts for strengthening and identifying federal policy opportunities related to the direct care workforce through interviews with 20 stakeholders in 7 states. Discusses federal funding, collaboration, workforce pipelines, equity, credentials, training, family caregivers, and home- and community-based services. Discusses rural throughout.
Author(s): Barbara Lyons, Molly O'Malley Watts
Date: 03/2024
Sponsoring organization: Commonwealth Fund
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Aging Our Way, PA: A Plan for Lifelong Independence
Draft of a master plan for aging (MPA) for Pennsylvania. Highlights 5 priorities areas and their associated strategies and tactics related to access to services, aging in place, independence, caregiving, and awareness building. Includes rural throughout.
Date: 02/2024
Sponsoring organization: Pennsylvania Department of Aging
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Draft of a master plan for aging (MPA) for Pennsylvania. Highlights 5 priorities areas and their associated strategies and tactics related to access to services, aging in place, independence, caregiving, and awareness building. Includes rural throughout.
Date: 02/2024
Sponsoring organization: Pennsylvania Department of Aging
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Behavioral Health Services Outcomes That Matter Most to Caregivers of Children, Youth, and Young Adults with Mental Health Needs
Used focus groups that included rural caregivers of children with behavioral health needs to identify behavioral health service outcomes valued by caregivers. Discusses access to care, service delivery, provider communication, caregiver training, stigma, caregiver wellness, and more. Discusses rural issues throughout.
Author(s): Genevieve Graaf, Katherine Kitchens, Millie Sweeney, Kathleen C. Thomas
Citation: International Journal of Environmental Research and Public Health, 21(2), 172
Date: 02/2024
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Used focus groups that included rural caregivers of children with behavioral health needs to identify behavioral health service outcomes valued by caregivers. Discusses access to care, service delivery, provider communication, caregiver training, stigma, caregiver wellness, and more. Discusses rural issues throughout.
Author(s): Genevieve Graaf, Katherine Kitchens, Millie Sweeney, Kathleen C. Thomas
Citation: International Journal of Environmental Research and Public Health, 21(2), 172
Date: 02/2024
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Caregiving Across the Life Course in Rural and Urban Households in the North Central Region
A recorded webinar that discusses the NCR-Stat: Caregiving Across the Life Course Survey dataset that focuses on child, adult, and elder caregiving. Survey dataset explores how caregiving impacts economic development in rural and urban communities in the North Central Region. Transcript available below description.
Author(s): Zuzana Bednarik, Shoshanah Inwood, Florence Becot
Date: 02/2024
Sponsoring organization: North Central Regional Center for Rural Development
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A recorded webinar that discusses the NCR-Stat: Caregiving Across the Life Course Survey dataset that focuses on child, adult, and elder caregiving. Survey dataset explores how caregiving impacts economic development in rural and urban communities in the North Central Region. Transcript available below description.
Author(s): Zuzana Bednarik, Shoshanah Inwood, Florence Becot
Date: 02/2024
Sponsoring organization: North Central Regional Center for Rural Development
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Supporting People with Disabilities in Rural Communities, with Rayna Sage and Catherine Ipsen
An episode of the Exploring Rural Health podcast featuring Rayna Sage, PhD, and Catherine Ipsen, PhD, co-directors of the Research and Training Center on Disability in Rural Communities at the University of Montana. Focuses on the challenges facing rural people with disabilities and services and support systems that enable them to achieve and maintain quality of life.
Date: 01/2024
Sponsoring organization: Rural Health Information Hub
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An episode of the Exploring Rural Health podcast featuring Rayna Sage, PhD, and Catherine Ipsen, PhD, co-directors of the Research and Training Center on Disability in Rural Communities at the University of Montana. Focuses on the challenges facing rural people with disabilities and services and support systems that enable them to achieve and maintain quality of life.
Date: 01/2024
Sponsoring organization: Rural Health Information Hub
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Compendium of Best Practices for Rural Age-Friendly Care
Offers best practices, models of care, policies, and more related to offering age-friendly care in rural settings. Covers care coordination, caregiving support, behavioral health, community programming, community health workers, the 4Ms, and state-level priorities.
Date: 2024
Sponsoring organizations: National Rural Health Association, The John A. Hartford Foundation
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Offers best practices, models of care, policies, and more related to offering age-friendly care in rural settings. Covers care coordination, caregiving support, behavioral health, community programming, community health workers, the 4Ms, and state-level priorities.
Date: 2024
Sponsoring organizations: National Rural Health Association, The John A. Hartford Foundation
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