Rural Health
Resources by Topic: Informal caregivers
Palliative Care Needs and Preferences of Older Adults with Advanced or Serious Chronic Illnesses and their Families in Rural Communities of Indiana, USA
Presents the experiences of caregivers in rural Indiana related to palliative care, the needs of older adults with chronic illnesses, and the impacts on their families. Discusses themes such as managing pain, caregiver trust, distance and access to care, managing difficult conversations, caregiver burden, and use of telehealth in rural areas.
Author(s): Nasreen Lalani, Kawther Hamash, Yitong Wang
Citation: Journal of Rural Health, 40(2), 368-375
Date: 08/2023
Type: Document
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Presents the experiences of caregivers in rural Indiana related to palliative care, the needs of older adults with chronic illnesses, and the impacts on their families. Discusses themes such as managing pain, caregiver trust, distance and access to care, managing difficult conversations, caregiver burden, and use of telehealth in rural areas.
Author(s): Nasreen Lalani, Kawther Hamash, Yitong Wang
Citation: Journal of Rural Health, 40(2), 368-375
Date: 08/2023
Type: Document
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Arkansas State Plan on Aging: Fiscal Years 2024-2027
Provides direction for long-term care efforts in the state of Arkansas. Focuses on implementation of the Older American Act (OAA), COVID-19 recovery, equity, access to home and community-based services, and caregiving infrastructure. Highlights population data on rural Arkansas citizens and rural-specific priorities.
Date: 06/2023
Type: Document
Sponsoring organization: Arkansas Department of Human Services
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Provides direction for long-term care efforts in the state of Arkansas. Focuses on implementation of the Older American Act (OAA), COVID-19 recovery, equity, access to home and community-based services, and caregiving infrastructure. Highlights population data on rural Arkansas citizens and rural-specific priorities.
Date: 06/2023
Type: Document
Sponsoring organization: Arkansas Department of Human Services
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Listening to Riders and Providers: A Synthesis Report on NADTC's Focus Groups and Stakeholder Meetings
Summarizes findings from four focus groups exploring how perceptions of transportation users may be impacted by race, ethnicity, culture, or other personal characteristics. Presents findings from older adults, younger adults with disabilities, and caregivers. Also reports on stakeholder meetings with urban/suburban and rural stakeholders. Identifies lessons learned and next steps to inform transportation diversity, equity, and inclusion efforts.
Date: 02/2023
Type: Document
Sponsoring organization: National Aging and Disability Transportation Center
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Summarizes findings from four focus groups exploring how perceptions of transportation users may be impacted by race, ethnicity, culture, or other personal characteristics. Presents findings from older adults, younger adults with disabilities, and caregivers. Also reports on stakeholder meetings with urban/suburban and rural stakeholders. Identifies lessons learned and next steps to inform transportation diversity, equity, and inclusion efforts.
Date: 02/2023
Type: Document
Sponsoring organization: National Aging and Disability Transportation Center
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Perceived Benefits of Geriatric Specialty Telemedicine among Rural Patients and Caregivers
Explores the perceived benefits of a Veterans Health Administration (VHA) geriatric specialty telemedicine service (GRECC Connect), which connects geriatric interdisciplinary teams in urban areas with older veterans in rural areas through videoconferencing platforms. Summarizes results of interviews 30 rural older adults enrolled in the VHA and their caregivers about the content and quality of their GRECC Connect visits.
Author(s): Eileen M. Dryden, Meaghan A. Kennedy, Jennifer Conti, et al.
Citation: Health Services Research, 58(Suppl 1), 26-35
Date: 02/2023
Type: Document
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Explores the perceived benefits of a Veterans Health Administration (VHA) geriatric specialty telemedicine service (GRECC Connect), which connects geriatric interdisciplinary teams in urban areas with older veterans in rural areas through videoconferencing platforms. Summarizes results of interviews 30 rural older adults enrolled in the VHA and their caregivers about the content and quality of their GRECC Connect visits.
Author(s): Eileen M. Dryden, Meaghan A. Kennedy, Jennifer Conti, et al.
Citation: Health Services Research, 58(Suppl 1), 26-35
Date: 02/2023
Type: Document
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Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) Meeting Minutes, January 19-20, 2023
Summarizes the Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) meeting held on January 19-20, 2023. Includes presentations and discussions on the Administration for Community Living (ACL) and the National Caregiver Strategy, age-friendly public health systems, the Area Health Education Centers (AHEC) Program, and Title VII mental and behavioral health education and training programs. Includes rural references throughout.
Date: 01/2023
Type: Document
Sponsoring organization: Advisory Committee on Interdisciplinary Community-Based Linkages
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Summarizes the Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) meeting held on January 19-20, 2023. Includes presentations and discussions on the Administration for Community Living (ACL) and the National Caregiver Strategy, age-friendly public health systems, the Area Health Education Centers (AHEC) Program, and Title VII mental and behavioral health education and training programs. Includes rural references throughout.
Date: 01/2023
Type: Document
Sponsoring organization: Advisory Committee on Interdisciplinary Community-Based Linkages
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National Community Care Corps Supporting Healthy Community Living: 2022-2023 Grantee Snapshots
Overview of funded projects related to volunteer programs intended to assist family caregivers, the elderly, and people with disabilities. Projects include training, respite, transportation, home modification, and more. Includes rural specific projects.
Date: 2023
Type: Document
Sponsoring organization: Community Care Corps
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Overview of funded projects related to volunteer programs intended to assist family caregivers, the elderly, and people with disabilities. Projects include training, respite, transportation, home modification, and more. Includes rural specific projects.
Date: 2023
Type: Document
Sponsoring organization: Community Care Corps
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National Advisory Council on the National Health Service Corps (NACNHSC) Meeting Minutes, November 15-16, 2022
Minutes from the November 15-16, 2022 meeting, including presentations on collaborative care, shortage designation policy, HRSA's geriatrics programs, family caregivers, effects of COVID-19, and National Health Service Corps updates.
Additional links: Agenda, Caring for the Care Collaborator: Building and Sustaining the Competent Team, Health Resources and Services Administration's Geriatrics Programs, Leading In Challenging Times… Creating the Future We Want and Our Communities and Patients Need, Policy Updates, Preparing Clinicians to "R.A.I.S.E." Family Caregivers
Date: 11/2022
Type: Document
Sponsoring organization: National Advisory Council on the National Health Service Corps
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Minutes from the November 15-16, 2022 meeting, including presentations on collaborative care, shortage designation policy, HRSA's geriatrics programs, family caregivers, effects of COVID-19, and National Health Service Corps updates.
Additional links: Agenda, Caring for the Care Collaborator: Building and Sustaining the Competent Team, Health Resources and Services Administration's Geriatrics Programs, Leading In Challenging Times… Creating the Future We Want and Our Communities and Patients Need, Policy Updates, Preparing Clinicians to "R.A.I.S.E." Family Caregivers
Date: 11/2022
Type: Document
Sponsoring organization: National Advisory Council on the National Health Service Corps
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2022 National Strategy to Support Family Caregivers
Report details and defines a national support strategy for family caregivers of all ages. Highlights strategies for caring for children, elderly adults, people with disabilities, people with chronic conditions, and post-acute conditions, among others. Also, discusses recommendations for caregivers residing in rural and underserved areas.
Additional links: Actions for States, Communities, and Others, Federal Actions, First Principles: Cross-Cutting Considerations for Family Caregiver Support
Date: 09/2022
Type: Document
Sponsoring organization: Administration for Community Living
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Report details and defines a national support strategy for family caregivers of all ages. Highlights strategies for caring for children, elderly adults, people with disabilities, people with chronic conditions, and post-acute conditions, among others. Also, discusses recommendations for caregivers residing in rural and underserved areas.
Additional links: Actions for States, Communities, and Others, Federal Actions, First Principles: Cross-Cutting Considerations for Family Caregiver Support
Date: 09/2022
Type: Document
Sponsoring organization: Administration for Community Living
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Family Caregiving for People with Cancer and Other Serious Illnesses: Proceedings of a Workshop
Reports on a May 2022 workshop exploring issues related to family caregivers and developing strategies to support and recognize their role in caring for their loved ones with cancer or other chronic illnesses. Discusses the increased role of family caregivers in rural and tribal communities and the importance of providing services, addressing social determinants of health, and allocating funding to better support family caregivers in these communities.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 05/2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Reports on a May 2022 workshop exploring issues related to family caregivers and developing strategies to support and recognize their role in caring for their loved ones with cancer or other chronic illnesses. Discusses the increased role of family caregivers in rural and tribal communities and the importance of providing services, addressing social determinants of health, and allocating funding to better support family caregivers in these communities.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 05/2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Differences in Distress Between Rural and Non-rural Appalachian Breast Cancer Patient / Caregiver Dyads During the First Year of Treatment
Results of a pilot study measuring self-reported anxiety, depression, and caregiver strain among 48 Appalachian breast cancer patients and their caregivers, as identified by the University of Tennessee Medical Center from 2019-2020. Features demographics and statistics on types of psychological distress at baseline, 6-week, 6-month, and 12-month time frames, with breakdowns by rural or nonrural location.
Author(s): Jordan Tasman, Callie D. McAdams, Jillian Lloyd, Ashton J. Brooks, Patricia Nola Eugene Roberson
Citation: Journal of Appalachian Health, 4(3), 56-70
Date: 03/2022
Type: Document
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Results of a pilot study measuring self-reported anxiety, depression, and caregiver strain among 48 Appalachian breast cancer patients and their caregivers, as identified by the University of Tennessee Medical Center from 2019-2020. Features demographics and statistics on types of psychological distress at baseline, 6-week, 6-month, and 12-month time frames, with breakdowns by rural or nonrural location.
Author(s): Jordan Tasman, Callie D. McAdams, Jillian Lloyd, Ashton J. Brooks, Patricia Nola Eugene Roberson
Citation: Journal of Appalachian Health, 4(3), 56-70
Date: 03/2022
Type: Document
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