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Resources by Topic: Hospice and palliative care

Challenges and Facilitators of Hospice Decision-making: A Retrospective Review of Family Caregivers of Home Hospice Patients in a Rural US-Mexico Border Region - A Qualitative Study
Highlights a study on hospice care utilization in the rural U.S.-Mexico border region of Southern California. Explores the decisions made by family care givers around hospice care and discusses the factors that shaped those decisions.
Author(s): Eunjeong Ko, Dahlia Fuentes, Savitri Singh-Carlson, Frances Nedjat-Haiem
Citation: BMJ Open, 10(7), e035634
Date: 07/2020
Type: Document
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Home on the Range: Plans and Providers Team Up to Bring Palliative Care to Rural Californians
Report discussing challenges and solutions to expanding palliative care access in rural California. Addresses barriers related to enrollment, staffing, and sustainability as well as strategies for creating partnerships between communities, healthcare systems, human services organizations, and other rural groups. Appendix features a chart listing health plans and rural providers offering palliative care services, with descriptions for each.
Author(s): Kathleen Kerr, Monique Parrish, Lyn Ceronsky
Date: 05/2020
Type: Document
Sponsoring organization: California Health Care Foundation
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Availability of Hospice in Rural Pennsylvania
Compares the distribution and number of hospices in rural and urban Pennsylvania counties, provides a descriptive profile of rural Pennsylvania's hospice users, and projects the number of future Pennsylvania hospice users. Includes information from interviews with hospice providers and administrators to help understand challenges and opportunities for stakeholders. Features statistics with breakdowns by rural and urban location and nonprofit or for-profit status, and a county-level map showing locations of Pennsylvania hospices as of 2019.
Additional links: Executive Summary
Author(s): Lisa Kitko, Joel Segel, Elizabeth Thiede
Date: 05/2020
Type: Document
Sponsoring organization: Center for Rural Pennsylvania
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Patient Perceptions of Video Visits Using Veterans Affairs Telehealth Tablets: Survey Study
Highlights a study on the perceptions of Veterans Affairs (VA) patients on the use of video-based telehealth via VA-issued tablets. Compares perceptions of rural and urban veterans and discusses some of the healthcare needs addressed through telehealth, including mental healthcare, primary care, and rehabilitation, among others.
Author(s): Cindie Slightam, Amy J Gregory, Jiaqi Hu, et al.
Citation: Journal of Medical Internet Research, 22(4), e15682
Date: 04/2020
Type: Document
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Forging a New Frontier: Providing Palliative Care to People with Cancer in Rural and Remote Areas
Shares the results of a literature review examining barriers and challenges related to integrating palliative and cancer care in rural and remote areas.
Author(s): Marie Bakitas, Kristen Allen Watts, Emily Malone, et al.
Citation: Journal of Clinical Oncology, 38(9), 963-973
Date: 03/2020
Type: Document
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MedPAC Report to the Congress: Medicare Payment Policy, 2020
Annual review of Medicare payment policies, with recommendations to Congress. Includes discussion on Medicare payment policies directly affecting rural providers and beneficiaries. Addresses payment adequacy for healthcare facilities and services, improving Medicare payment for post-acute care, Medicare Advantage, Medicare Part D, and the impact of healthcare provider consolidation.
Date: 03/2020
Type: Document
Sponsoring organization: Medicare Payment Advisory Commission
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There's No Place Like Home: Home Health Care in Rural America
Recording of testimony by providers of rural home health care and representatives of home health and hospice organizations, in a hearing held by the United States Senate Special Committee on Aging on February 12, 2020. Addresses challenges including workforce shortages and limitations in Medicare coverage for needed services.
Additional links: Testimony of Francis Adams, Testimony of Leigh Ann Howard, Testimony of Warren Hebert, Testimony of William A. Dombi
Date: 02/2020
Type: Audio
Sponsoring organization: U.S. Senate Special Committee on Aging
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Barriers to Palliative and Hospice Care Utilization in Older Adults with Cancer: A Systematic Review
Shares the results of a literature review analyzing various sociodemographic variables, including rural residence, to describe challenges older adults with cancer experience when accessing hospice and palliative care services.
Author(s): Jyotsana Parajuli, Aluem Tark, Ying-Ling Jao, Judith Hupcey
Citation: Journal of Geriatric Oncology, 11(1), 8-16
Date: 01/2020
Type: Document
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January 2020 MedPAC Meeting Transcript
Transcript from the Medicare Payment Advisory Commission's (MedPAC) January 2020 meeting. Covers payment adequacy and updates for hospital inpatient and outpatient services, physician and other health professional services, outpatient dialysis services and improving the ESRD payment system, skilled nursing facility services, home health agency services, long-term care hospital services, inpatient rehabilitation facility services, hospice services, and ambulatory surgical center services. Includes rural references throughout.
Date: 01/2020
Type: Document
Sponsoring organization: Medicare Payment Advisory Commission
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Bringing Palliative Care To Underserved Rural Communities
Discusses challenges and strategies related to providing palliative care to rural, predominantly Black communities in the South. Focuses on bridging cultural divides and integrating patient spirituality into the healthcare process.
Author(s): Charlotte Huff
Citation: Health Affairs, 38(12)
Date: 12/2019
Type: Document
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