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Resources by Topic: Hospice and palliative care

Palliative Care Needs and Preferences of Older Adults with Advanced or Serious Chronic Illnesses and their Families in Rural Communities of Indiana, USA
Presents the experiences of caregivers in rural Indiana related to palliative care, the needs of older adults with chronic illnesses, and the impacts on their families. Discusses themes such as managing pain, caregiver trust, distance and access to care, managing difficult conversations, caregiver burden, and use of telehealth in rural areas.
Author(s): Nasreen Lalani, Kawther Hamash, Yitong Wang
Citation: Journal of Rural Health, 40(2), 368-375
Date: 08/2023
Type: Document
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MedPAC Data Book: Health Care Spending and the Medicare Program, 2023
Provides an overview of Medicare spending and highlights data on Medicare beneficiary demographics, dual-eligible beneficiaries, quality of care provided through the Medicare program, and other payer liability. Examines settings of care, including rural-specific provider sites, as they relate to spending, access to care, and profit margins. Compares rural and urban beneficiaries and providers throughout. Chart 6-2 addresses rural hospital closures.
Date: 07/2023
Type: Document
Sponsoring organization: Medicare Payment Advisory Commission
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Texans' Views and Experiences with End-of-Life Issues
Survey of 2,305 Texans regarding attitudes, experiences, and needs around illness and end-of-life issues. Discusses barriers to access of end-of-life care, race and ethnicity, insurance status, and more. Includes rural data throughout.
Additional links: Research Summary
Date: 06/2023
Type: Document
Sponsoring organizations: Perry Undem, St. David's Foundation
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NHPCO Pediatric Facts and Figure, 2023 Edition
Provides an overview of pediatric hospice and palliative care in the United States. Includes information and data on patient characteristics, access to care, reimbursement, barriers and facilitators to care, and more. Section 3 compares the number and percentage of metropolitan and non-metropolitan counties with access to pediatric hospice and palliative care.
Date: 06/2023
Type: Document
Sponsoring organization: National Hospice and Palliative Care Organization
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2023 National Survey on MIH-CP Programs
Results of a February 2023 survey of approximately 400 emergency medical services (EMS) agencies nationwide that have launched mobile integrated healthcare and community paramedicine (MIH-CP) programs. Features statistics on nontraditional services offered, and programs by demographic region served, with breakdowns by 3 levels of population density.
Date: 05/2023
Type: Document
Sponsoring organization: National Association of Emergency Medical Technicians
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Guidance for the Expiration of the COVID-19 Public Health Emergency (PHE)
Outlines the emergency waivers related to the minimum health and safety requirements for long-term care and acute continuing care providers that are expiring at the end of the COVID-19 public health emergency (PHE). Describes the timelines for certain regulatory requirements issued during the PHE through interim final rules.
Date: 05/2023
Type: Document
Sponsoring organization: Centers for Medicare and Medicaid Services
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Hospice: CMS Flexibilities to Fight COVID-19
Outlines specific regulatory waivers and Medicare flexibilities for hospice providers issued in response to the COVID-19 pandemic. Includes information on payments for COVID-19 vaccines and therapeutics. Identifies whether each waiver or flexibility has been terminated, will end at the conclusion of the public health emergency, or has become permanent.
Date: 05/2023
Type: Document
Sponsoring organization: Centers for Medicare and Medicaid Services
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Palliative Care and Healthcare Utilization among Metastatic Breast Cancer Patients in U.S. Hospitals
Examines in-patient palliative care use by hospitalized metastatic breast cancer patients. Analyzes 26,961 female patients from 2010 to 2014 for palliative care use, with patient information further broken down by age, race, income, insurance type, and status of hospital utilized, such as urban teaching, urban nonteaching, or rural.
Author(s): Sun Jung Kim, Isha Patel, Chanhyun Park, Dong Yeong Shin, Jongwha Chang
Citation: Scientific Reports,13, 4358
Date: 03/2023
Type: Document
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MedPAC Report to the Congress: Medicare Payment Policy, 2023
Annual review of Medicare payment policies, with recommendations to Congress. Includes discussion on Medicare payment policies directly affecting rural providers and beneficiaries. Addresses payment adequacy for healthcare facilities and services; Medicare Advantage (MA), including a mandated report comparing per enrollee spending in the MA program with that of traditional fee-for-service (FFS) Medicare; and Medicare Part D.
Date: 03/2023
Type: Document
Sponsoring organization: Medicare Payment Advisory Commission
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Access to Health Services Across Rural and Urban Minoritized Racial/Ethnic Group Areas
Summarizes results from a series of reports documenting disparities in access to health services nationwide across ZIP Code Tabulation Areas (ZCTAs) categorized by rurality and racial and ethnic composition. Presents data on the distance to care from the population center of rural and urban ZCTAs to the nearest provider. Covers first line, higher acuity, and home-based services.
Date: 03/2023
Type: Document
Sponsoring organization: Rural and Minority Health Research Center (formerly the South Carolina Rural Health Research Center)
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