Rural Health
Resources by Topic: Hospice and palliative care
Systematic Review of Palliative Care in the Rural Setting
Synthesizes the results of an extensive search of the medical literature focused on the developments in palliative care for patients living in rural areas in the U.S. and internationally to determine where gaps in the research may occur. Suggests promising approaches including telehealth, community-academic partnerships, and training for rural healthcare providers.
Author(s): Marie A. Bakitas, Ronit Elk, Meka Astin, et al.
Citation: Cancer Control, 22(4), 450-464
Date: 10/2015
Type: Document
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Synthesizes the results of an extensive search of the medical literature focused on the developments in palliative care for patients living in rural areas in the U.S. and internationally to determine where gaps in the research may occur. Suggests promising approaches including telehealth, community-academic partnerships, and training for rural healthcare providers.
Author(s): Marie A. Bakitas, Ronit Elk, Meka Astin, et al.
Citation: Cancer Control, 22(4), 450-464
Date: 10/2015
Type: Document
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Challenges of Rural Cancer Care in the United States
Highlights the impact of rurality affecting the care of rural cancer patients and healthcare providers treating cancer patients. Discussion includes the availability of cancer specialists, limited transportation services, lower socioeconomic status, health insurance coverage, less access to clinical trials, and the shortage of palliative and end-of-life staff and services.
Author(s): Mary Charlton, Jennifer Schlichting, Catherine Chioreso, et al.
Citation: Oncology (Williston Park), 29(9), 633-640
Date: 09/2015
Type: Document
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Highlights the impact of rurality affecting the care of rural cancer patients and healthcare providers treating cancer patients. Discussion includes the availability of cancer specialists, limited transportation services, lower socioeconomic status, health insurance coverage, less access to clinical trials, and the shortage of palliative and end-of-life staff and services.
Author(s): Mary Charlton, Jennifer Schlichting, Catherine Chioreso, et al.
Citation: Oncology (Williston Park), 29(9), 633-640
Date: 09/2015
Type: Document
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Benefits of Early Versus Delayed Palliative Care to Informal Family Caregivers of Patients With Advanced Cancer: Outcomes From the ENABLE III Randomized Controlled Trial
Examines the effects of introducing early palliative care intervention in rural settings for family caregivers (CGs) of patients with advanced-stage cancer by comparing the ENABLE (Educate, Nurture, Advise Before Life Ends) model of early palliative care with the customary cancer care. Addresses the CGs needs and how meeting these needs would support problem solving, decision making, and advance care planning.
Author(s): J. Nicholas Dionne-Odom, Andres Azuero, Kathleen D. Lyons, et al.
Citation: Journal of Clinical Oncology, 33(13), 1446-1452
Date: 05/2015
Type: Document
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Examines the effects of introducing early palliative care intervention in rural settings for family caregivers (CGs) of patients with advanced-stage cancer by comparing the ENABLE (Educate, Nurture, Advise Before Life Ends) model of early palliative care with the customary cancer care. Addresses the CGs needs and how meeting these needs would support problem solving, decision making, and advance care planning.
Author(s): J. Nicholas Dionne-Odom, Andres Azuero, Kathleen D. Lyons, et al.
Citation: Journal of Clinical Oncology, 33(13), 1446-1452
Date: 05/2015
Type: Document
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Early Versus Delayed Initiation of Concurrent Palliative Oncology Care: Patient Outcomes in the ENABLE III Randomized Controlled Trial
Examines the effects of early versus delayed palliative care, the ENABLE (Educate, Nurture, Advise, Before Life Ends) model. ENABLE has shown to be an effective telehealth model particularly for patients with advanced stages of cancer and family caregivers in rural areas. Patient outcomes reported focused on quality of life, symptoms, temperament, survival rate, and hospital and clinical care use.
Author(s): Marie A. Bakitas, Tor D. Tosteson, Zhigang Li, et al.
Citation: Journal of Clinical Oncology, 33(13), 1438-1445
Date: 05/2015
Type: Document
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Examines the effects of early versus delayed palliative care, the ENABLE (Educate, Nurture, Advise, Before Life Ends) model. ENABLE has shown to be an effective telehealth model particularly for patients with advanced stages of cancer and family caregivers in rural areas. Patient outcomes reported focused on quality of life, symptoms, temperament, survival rate, and hospital and clinical care use.
Author(s): Marie A. Bakitas, Tor D. Tosteson, Zhigang Li, et al.
Citation: Journal of Clinical Oncology, 33(13), 1438-1445
Date: 05/2015
Type: Document
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Coming Full Circle
Profiles Paula Lynch, who was helped by HopeWest Hospice's Mending Hearts adult grief support program after the loss of her son. She now gives back by helping others as she was helped.
Author(s): Kate Menzies
Citation: Rural Monitor
Date: 05/2015
Type: Document
Sponsoring organization: Rural Health Information Hub
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Profiles Paula Lynch, who was helped by HopeWest Hospice's Mending Hearts adult grief support program after the loss of her son. She now gives back by helping others as she was helped.
Author(s): Kate Menzies
Citation: Rural Monitor
Date: 05/2015
Type: Document
Sponsoring organization: Rural Health Information Hub
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Perspectives of Rural Hospice Directors
Presents findings from interviews of rural hospice directors in 47 states. Identifies six primary issues including workforce, finance and reimbursement, regulations, technology, general rural issues, and relationships with other providers.
Author(s): Brad Gibbens, Shawnda Schroeder, Alana Knudson, Gary Hart
Date: 03/2015
Type: Document
Sponsoring organization: Rural Health Reform Policy Research Center
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Presents findings from interviews of rural hospice directors in 47 states. Identifies six primary issues including workforce, finance and reimbursement, regulations, technology, general rural issues, and relationships with other providers.
Author(s): Brad Gibbens, Shawnda Schroeder, Alana Knudson, Gary Hart
Date: 03/2015
Type: Document
Sponsoring organization: Rural Health Reform Policy Research Center
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Quality of Hospice Care: Comparison Between Rural and Urban Residents
Examines perceptions of hospice care by 331 rural and 412 urban hospice patients or family members in the Southeastern United States, from September 2009 through April 2010. Features statistics with breakdowns by rural or urban location, patient race, and cancer or non-cancer diagnosis.
Author(s): Marianne Baernholdt, Cathy L. Campbell, Ivora D. Hinton, Guofen Yan, Erica Lewis
Citation: Journal of Nursing Care Quality, 30(3), 247-253
Date: 2015
Type: Document
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Examines perceptions of hospice care by 331 rural and 412 urban hospice patients or family members in the Southeastern United States, from September 2009 through April 2010. Features statistics with breakdowns by rural or urban location, patient race, and cancer or non-cancer diagnosis.
Author(s): Marianne Baernholdt, Cathy L. Campbell, Ivora D. Hinton, Guofen Yan, Erica Lewis
Citation: Journal of Nursing Care Quality, 30(3), 247-253
Date: 2015
Type: Document
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Translating and Testing the ENABLE: CHF-PC Concurrent Palliative Care Model for Older Adults with Heart Failure and Their Family Caregivers
Reports on an evaluation study to determine the feasibility and satisfaction of converting a cancer-focused concurrent palliative care (PC) intervention into early PC for rural patients with a diagnosis of heart failure.
Author(s): J. Nicholas Dionne-Odom, Alan Kono, Jennifer Frost, et al.
Citation: Journal of Palliative Medicine, 17(9), 995-1004
Date: 09/2014
Type: Document
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Reports on an evaluation study to determine the feasibility and satisfaction of converting a cancer-focused concurrent palliative care (PC) intervention into early PC for rural patients with a diagnosis of heart failure.
Author(s): J. Nicholas Dionne-Odom, Alan Kono, Jennifer Frost, et al.
Citation: Journal of Palliative Medicine, 17(9), 995-1004
Date: 09/2014
Type: Document
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Long-Term Care Services in the United States: 2013 Overview
Presents descriptive results from the first findings of the National Study of Long-Term Care Providers (NSLTCP). Provides information on the supply, staffing, and services offered by providers of long-term care services; and the demographic, health, and users of these services. Figure 2 shows the distribution of providers among metropolitan, micropolitan, and non-metro areas by type of service: adult day services, home health, hospice, nursing home, and residential care community.
Author(s): Lauren Harris-Kojetin, Manisha Sengupta, Eunice Park-Lee, Roberto Valverde
Date: 12/2013
Type: Document
Sponsoring organization: National Center for Health Statistics
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Presents descriptive results from the first findings of the National Study of Long-Term Care Providers (NSLTCP). Provides information on the supply, staffing, and services offered by providers of long-term care services; and the demographic, health, and users of these services. Figure 2 shows the distribution of providers among metropolitan, micropolitan, and non-metro areas by type of service: adult day services, home health, hospice, nursing home, and residential care community.
Author(s): Lauren Harris-Kojetin, Manisha Sengupta, Eunice Park-Lee, Roberto Valverde
Date: 12/2013
Type: Document
Sponsoring organization: National Center for Health Statistics
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Hospice Workforce: An Annotated Review of the Literature
Contains an annotated review of hospice workforce literature published between 2000 and 2013. Review was completed to assist in identifying hospice provider types for a hospice workforce study by the Rural Health Reform Policy Research Center.
Author(s): Shawnda Schroeder
Date: 11/2013
Type: Document
Sponsoring organization: Rural Health Reform Policy Research Center
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Contains an annotated review of hospice workforce literature published between 2000 and 2013. Review was completed to assist in identifying hospice provider types for a hospice workforce study by the Rural Health Reform Policy Research Center.
Author(s): Shawnda Schroeder
Date: 11/2013
Type: Document
Sponsoring organization: Rural Health Reform Policy Research Center
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