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Resources by Topic: Hospice and palliative care

A Community-Developed, Culturally-Based Palliative Care Program for African American and White Rural Elders with a Life-Limiting Illness: A Program By The Community for the Community
Describes the development of a culturally-based palliative care program in Beaufort, South Carolina. Discusses different preferences for care between African American and White focus group participants, such as the involvement of family members and the role of hospice and palliative care.
Author(s): Ronit Elk
Citation: Narrative Inquiry in Bioethics, 7(1), 36-40
Date: 2017
Type: Document
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Stratis Health Rural Palliative Care Impact Report
Report examines palliative care models that have proven to be effective in rural areas of Minnesota and establishes measures to understand ways in which palliative care offers value to patients and promotes community development.
Date: 07/2016
Type: Document
Sponsoring organization: Stratis Health
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Dementia - Capable North Carolina: A Strategic Plan for Addressing Alzheimer's Disease and Related Dementias
Presents results from the North Carolina Senate mandated Task Force on Alzheimer's Disease and Related Dementias. Offers recommendations focused on improving statewide awareness and education about Alzheimer's disease and dementia, supporting people with dementia and their families, enhancing services for treatment of Alzheimer's disease and dementia including those in underserved areas, and improving data collection and research.
Date: 03/2016
Type: Document
Sponsoring organizations: North Carolina Department of Health and Human Services, North Carolina Institute of Medicine
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Second Annual Report: HCIA Disease-Specific Evaluation
Second annual evaluations of 18 Health Care Innovation Awards Round One projects targeting patient populations with specific diseases. Discusses experiences common across grantees and profiles each project. Includes projects that serve a variety of rural areas and address conditions such as diabetes, cancer, cardiovascular disease, and chronic pain. Approaches discussed include care coordination, education, and telehealth.
Date: 03/2016
Type: Document
Sponsoring organizations: Centers for Medicare and Medicaid Services, NORC at the University of Chicago
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MedPAC Report to the Congress: Medicare Payment Policy, 2016
Annual review of Medicare payment policies, with recommendations to Congress. Discussions of rural aspects of Medicare payment policies are included throughout the report. Focuses on payment adequacy, Medicare Advantage, and Medicare Part D.
Date: 03/2016
Type: Document
Sponsoring organization: Medicare Payment Advisory Commission
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Palliative Care in Rural Minnesota: Findings from Stratis Health's Minnesota Rural Palliative Care Initiative
Describes a 6-year initiative directed by Stratis Health supporting palliative care in rural areas of Minnesota. Features a palliative care development initiative in the rural city of Mora, Minnesota and describes the Rural Palliative Care Measurement Pilot Project testing standardized quality measures in 5 rural communities.
Author(s): Deb McKinley, Janelle Shearer, Karla Weng
Citation: Minnesota Medicine, 99(1), 39-41
Date: 01/2016
Type: Document
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Systematic Review of Palliative Care in the Rural Setting
Synthesizes the results of an extensive search of the medical literature focused on the developments in palliative care for patients living in rural areas in the U.S. and internationally to determine where gaps in the research may occur. Suggests promising approaches including telehealth, community-academic partnerships, and training for rural healthcare providers.
Author(s): Marie A. Bakitas, Ronit Elk, Meka Astin, et al.
Citation: Cancer Control, 22(4), 450-464
Date: 10/2015
Type: Document
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Challenges of Rural Cancer Care in the United States
Highlights the impact of rurality affecting the care of rural cancer patients and healthcare providers treating cancer patients. Discussion includes the availability of cancer specialists, limited transportation services, lower socioeconomic status, health insurance coverage, less access to clinical trials, and the shortage of palliative and end-of-life staff and services.
Author(s): Mary Charlton, Jennifer Schlichting, Catherine Chioreso, et al.
Citation: Oncology (Williston Park), 29(9), 633-640
Date: 09/2015
Type: Document
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Benefits of Early Versus Delayed Palliative Care to Informal Family Caregivers of Patients With Advanced Cancer: Outcomes From the ENABLE III Randomized Controlled Trial
Examines the effects of introducing early palliative care intervention in rural settings for family caregivers (CGs) of patients with advanced-stage cancer by comparing the ENABLE (Educate, Nurture, Advise Before Life Ends) model of early palliative care with the customary cancer care. Addresses the CGs needs and how meeting these needs would support problem solving, decision making, and advance care planning.
Author(s): J. Nicholas Dionne-Odom, Andres Azuero, Kathleen D. Lyons, et al.
Citation: Journal of Clinical Oncology, 33(13), 1446-1452
Date: 05/2015
Type: Document
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Early Versus Delayed Initiation of Concurrent Palliative Oncology Care: Patient Outcomes in the ENABLE III Randomized Controlled Trial
Examines the effects of early versus delayed palliative care, the ENABLE (Educate, Nurture, Advise, Before Life Ends) model. ENABLE has shown to be an effective telehealth model particularly for patients with advanced stages of cancer and family caregivers in rural areas. Patient outcomes reported focused on quality of life, symptoms, temperament, survival rate, and hospital and clinical care use.
Author(s): Marie A. Bakitas, Tor D. Tosteson, Zhigang Li, et al.
Citation: Journal of Clinical Oncology, 33(13), 1438-1445
Date: 05/2015
Type: Document
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