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Resources by Topic: Dementia

Distance as an Obstacle to Clinical Trial Access: Who Is Affected and Why It Matters
Evaluates factors associated with geographic remoteness of 60 miles or more from the nearest phase 2 or 3 clinical trial for a variety of health conditions. Discusses American Indian reservations and rural areas, and provides data on demographic factors associated with remoteness including race and ethnicity, educational attainment, and poverty. Includes a county-level interactive map of clinical trial remoteness for health conditions including cancers, substance use disorder, diabetes, obesity, COPD, stroke, and more.
Additional links: Interactive Map
Author(s): Andrew Friedson, Bumyang Kim, Maggie Switek, Lawson Mansell
Date: 06/2024
Type: Document
Sponsoring organization: The Milken Institute
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Diagnosed Dementia in Adults Age 65 and Older: United States, 2022
Examines the prevalence of diagnosed dementia in the U.S. population in adults aged 65 or older. Utilizes 2022 National Health Interview Survey data to observe dementia prevalence in noninstitutionalized adults, with breakdowns according to age, sex, veteran status, race/ethnicity, education, income, region, and urbanization level, including large central metropolitan, large fringe metropolitan, medium and small metropolitan, and nonmetropolitan location.
Author(s): Ellen A. Kramarow
Date: 06/2024
Type: Document
Sponsoring organization: National Center for Health Statistics
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Access to Preferred Skilled Nursing Facilities: Transitional Care Pathways for Patients with Alzheimer's Disease and Related Dementias
Examines the ability of patients with Alzheimer's disease and related dementias (ADRD) to access their preferred skilled nursing facility (SNF). Analyzes 2017-2019 data from 3,019,260 Medicare hospitalizations that resulted in an SNF transfer, with breakdowns according to ADRD or non-ADRD patient, age, sex, race/ethnicity, hospitalization, distance to care, and metro, micro, small town, or rural location.
Author(s): Dori A. Cross, Taylor I. Bucy, Momotazur Rahman, John P. McHugh
Citation: Health Services Research, 59(2)
Date: 04/2024
Type: Document
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Racial, Ethnic, and Rural Disparities in Distance to Physicians among Decedents with Alzheimer's Disease and Related Dementias in Washington State
Evaluates travel distance to the nearest neurologist and primary care physician among people whose cause of death was related to Alzheimer's disease and related dementias (AD/ADRD) in the state of Washington. Utilizes 2011-2021 mortality data. Includes breakdowns of distance to care by race, ethnicity, and level of rurality. Highlights geographic access disparities experienced by American Indian, Alaska Native, and Hispanic people.
Author(s): Solmaz Amiri, Jonae I. Keffeler, Dennis R. Crain, Justin T. Denney, Dedra Buchwald
Citation: Alzheimer's & Dementia, 20(5), 3671–3678
Date: 03/2024
Type: Document
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2024-2026 Tennessee State Health Plan
Presents a plan for health improvement in Tennessee for the period 2024-2026. Describes the state of health in Tennessee, identifies priorities, and makes recommendations related to early life, care delivery, social determinants of health, and more. Highlights goals for nutrition, maternal and infant health, older adults and healthy aging, chronic conditions, cancer screening, transportation, and health workforce.
Additional links: State Health Plan Priority Areas
Date: 03/2024
Type: Document
Sponsoring organization: Tennessee Department of Health
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Breast Cancer Screening among Medicare Advantage Enrollees with Dementia
Compares rates of mammogram screening among screening-eligible women with Alzheimer's disease and related dementias (ADRD) using 2012-2019 Medicare Current Beneficiary Survey data. Compares screening rates of Medicare Advantage and fee-for-service Medicare enrollees, with data breakdowns by race and ethnicity, rural versus urban status, and more. Identifies potential risks related to over-screening.
Author(s): Eli Raver, Wendy Y. Xu, Jean Jung, Sunmin Lee
Citation: BMC Health Services Research, 24, 283
Date: 03/2024
Type: Document
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Infection Control Policies and Practices in Residential Care Communities by Selected Organizational and Geographic Characteristics: United States, 2020
Presents nationally representative data on the percentage of residential care communities with emergency operations plans that are specific to or include pandemic response, approaches to implement these plans, and infection control policies and practices. Compares infection control policies and practices by metropolitan status, community bed size, ownership status, chain affiliation, and whether the community has a designated space for dementia care.
Author(s): Amanuel Melekin, Manisha Sengupta
Date: 02/2024
Type: Document
Sponsoring organization: National Center for Health Statistics
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Alzheimer Disease or Other Dementias in Adult Day Services Centers, 2020
Examines the prevalence of Alzheimer disease and other dementias among adult day services center (ADSC) participants using data from the ADSC component of the 2020 National Post-acute and Long-term Care Study (NPALS). Compares the prevalence of these conditions in ADSCs that provide specialized care for dementia with other ADSCs by census region, metropolitan statistical area status, chain affiliation, and ownership type.
Author(s): Priyanka Singh, Jessica P. Lendon, Manisha Sengupta
Date: 01/2024
Type: Document
Sponsoring organization: National Center for Health Statistics
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Modeling Early Detection and Geographic Variation in Health System Capacity for Alzheimer's Disease–Modifying Therapies
Examines the impact of disease-modifying therapies (DMTs) to slow the progression of early-stage Alzheimer's disease (AD) and the availability of DMTs across the U.S. Discusses wait times for DMTs in rural versus urban areas and provides U.S. maps showing demographic and healthcare workforce supply data by county.
Author(s): Jodi L. Liu, Lawrence Baker, Annie Chen, Jessie Wang, Federico Girosi
Date: 2024
Type: Document
Sponsoring organization: RAND Corporation
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2024 Alzheimer's Disease Facts and Figures
Provides an overview of Alzheimer's disease in the United States, including prevalence, mortality and morbidity, and issues related to caregivers of persons with Alzheimer's. Includes discussions about challenges of the disease for patients, providers, and caregivers in rural areas.
Author(s): Joseph Gaugler, Bryan James, Tricia Johnson, et al.
Date: 2024
Type: Document
Sponsoring organization: Alzheimer's Association
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